



I read about www.mymedschedule.com in the September issue of Better Homes and Gardens, and I am finally getting around to passing this fabulous organizational tool on to you.
My mind has cleared enough for me to organize my movements. I'm finally starting to get my life back in order starting with cleaning the piles of clutter from my house.
I’m in my favorite stage of treatment: recovery!
Actually, I would say recovered.
After the initial start of steroid therapy it takes a couple weeks to reorganize yourself and trust that the change will stay.
You never really appreciate how sweet life is until all the joy has been sucked out of it. Everytime I make significant leaps and bounds in healing, I feel like a whole new woman, with a whole new lease on life.
Thank you everybody for the words of encouragement.
They have been integral in reminding me who I am. Struggling for so long just to sustain the basic needs of my body (breathing!) will make you forget about those little sparks that make you.
It’s so important, in life, to make sure the basic needs of people are met. Without the fundamentals, the basics, nothing can be built.
I think this simple fact has been lost in our fast paced world of distractions.
It’s like the basketball coach that wants their team to do intricate plays before first teaching individual ball handling skills, dribbling, and passing.
You have to first have a strong foundation before great things can be built.
My body is my foundation, and now I have it back!
I’m using this time like I have for the past years: to enjoy friends, family, and hopefully make a lasting impact.
In my life review this December, I realized the best thing I have done is to keep living through out treatment.
The best thing anybody can do when facing trials like mine is to make the best of what has to be done: throw parties in the chemo room, learn to knit or draw, and absolutely, still force yourself out to participate in the world.
Forcing myself to leave my house to attend functions even when I was clearly sick and disabled has given me such positive feedback.
Of course, there is always the vanity hurdle.
I knew this existed for many who don’t want to show their face in public looking sick or weak, but I always put on my brave face and bald head to run out in the world.
With the addition of oxygen, that all changed. I grew up with stereotypes regarding who had to wear oxygen. These people were smokers. They smelled. They were likely low income and uneducated. They had holes where there should have been teeth and clothes littered with cat hair and stench.
Suddenly, I had the tank.
I wanted to joke when people stared and say things like, “No smoking kids!” or “This could be your future.” But none of this seemed funny.
I couldn’t find the sense of humor in it.
This period of health will help me deal mentally with the stereotypesI have regarding people in need of wearing oxygen. I will likely be one of them again, even though my pulmonologist did recommend several possible treatments such as photopharesis.
I almost wonder if an ablative transplant that implants my sister’s cells would work, but that’s just a wonder. It’s not something that would, should, or could actually happen.
Today starts our new Sunday routine. X and I will be attending church with my parents before grocery shopping.
This way we can still keep our coveted playdate later.
Jon is off to San Diego today.
He is feeling like a big wig flying across the country to bring a job back home to NH. He’s been gloating for weeks, and I am insanely jealous
Hi To All
Hillary has had a very good last 2-3 weeks. The best she has had since June. Dr G tried to put her into the hospital on Dec 22nd but she just cried a little and pulled it back together. I told Dr G that I don't thinks she wants to stay. He thought I was very astute at reading human behavior!! He did get the message and got all the tests that he was going to admit her for done as an out patient in about 4 hours. He was just like Santa Clause pulling the best gift out of his sack!! They put her back on steroids and has improved greatly. This week she has gone to Boston twice. She now has a lung specialist from Dana Farber that understands the problem and has seen it many times before. The communication between departments at Dartmouth has not been good. She did tell me that this is a good as her lungs expect to get. She has improved a lot as she went sliding with xander. 1 trip was all she could take but she did it! We just look at it as another day in paradise. 1 day she can enjoy. She really expects the cancer to come back with avengence from the steroids this time. Not sure her lungs can take another dose of chemo. She sees what is coming and hopes it doesn't. But she isn't going to just hang around and wait for something bad to happen. We are all coaching Basketball for 1st graders this morning!! Is there any better way to enjoy the day!! No time to waste
Heather, Allen, Pierce and Preston were up for the Holiday. Allen is doing some amazing work at Boston Scientific. He has found it very challenging and has stepped up his work to meet it. Heather looks great for 10 weeks after having Preston. The kids were a lot of fun during the holidays.
Medical in Portland. She is finishing her Bachelor of Science in Nursing. She already has her RN degree. Pat and Grace are hoping to get all the plans together for a October 2nd wedding. Patrick is in his last semester at Vermont tech for his Environmental Science and Engineering Degree. He is looking for a job in the Portland area after he graduates so that Grace can continue getting her Nurse Practioner or further degrees.