It's past midnight, and I can't sleep. I have insomnia! That's one of the very first signs of prednisone side effects. What else am I doing? I'm eating! I couldn't sleep bc I was thinking about eating! I woke up and cooked myself some adobe chicken on the foreman. I think I can handle protein. I've narrowed down foods I can eat: apples, tangerines, or fruits and veggies, deli turkey slices, and nuts. Still, this is a good sign. I was able to organize my meds today so I can function efficiently. I also called the doc team: Dr. O now at columbia pres. With his nurse Ellen and Dr. Alyea with his NP Melissa at Dana Farber in Boston. Alyea will manage my GVHD, somehow, maybe by finding me a genius specialist. O'Connor is the treatment guy, except the revlomid which is the chemo I may take until feb may make gvhd worse. I can't even take therapy until I heal and gain strength. I think I'm headed straight to trial at columbia in Feb. It's only two weeks away. Its two weeks to stabilize myself. Funny thing is, when I feel the worst, I'm always told I look so great. I get the comment from my specialists, "Wow, you look great for what you've been through, so much different than I pictured you.". I wonder, how did they picture me? Blue in a box seems to be the consensus so I guess somewhere barely above there. Thank you for the comments. Your support is my inspiration. Any questions, ask. I'm here to serve and honestly answer.
Sent from my Verizon Wireless BlackBerry
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