Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Sunday, August 19, 2012

Update from Vic...

Hi Too All!
Today is August 16. 30 years ago Heather and Hillary were born. It seems like a long time ago but it also seems like it was way to short. Hillary has been gone now for a little more than 6 months but today was particularly hard. How many times was she asked her Birthday? Every time in the hospital when it came time to make sure what meds were being given or for admission or for whatever She always would say 8-16-82.
Since then my mom has passed away. I think she was broken hearted that she outlived her grand-daughter. She was a remarkable woman that Hillary and all of us admired. When I was down my mom would always say the right things and then pray hard for me. Most often to ST Jude --Saint of the impossible. Positive attitude and many prayers got us a long way.
We also lost a good friend and neighbor in June. The day after Nancy's birthday. Tony Zutter had lung cancer. He only had it a short time and the lord took him quickly. He is buried just a short distance from Hillary.

Hillary's grave stone is now in. Jon had a chip embedded in the granite that you can scan and it brings you to Hillary's Blog. Jon had been after me for a while to write something so that the Blog would have some fresh material. This one hasn't started off so positive so I have to be much more upbeat.

Xander is ready to start 4th grade in just 10 days. The summer has gone by quickly. Camping, Soccer and Basketball camps, a trip to Yankee Stadium to watch the Red Sox beat the Yankees were all high lites. TJ an friend of Jon's has been a great help. He has been ill and can;t work right now so he has been staying with Jon and xander and keeping Xander very busy during the day while Jon tries to to go to work. Jon is hoping to finish his mechanical engineering degree now. He had put that on hold to spend time with Hillary.

Happy birthday Heather. Heather is Pregnant. She found out that is going to be another boy. She was hoping for a girl and would have Named her Hillary. Allen is currently in Switzerland as a project manager for Johnson and Johnson. He is only there for a few days. Heather has her last class this weekend for her masters degree in special education. She always told me I was special and now she can teach me!!


Patrick and Grace are in there new house. Looks great. Still lots of things to do to get it finished but I think I still need to do a lot after 23 years. All seems good as they are higher up on the hill behind our house and can look down on us.

Nancy has had a tough day today. We went to the movies to try to keep our minds off the day. Xander was with us. He wanted to see " Timothy Greene" I was good till the end when he said something about living just a short time. Not a dry tear in the house! This week Nancy found out she has to have a spot removed. It has the c--- word. Usually Skin Cancer is not a big worry but-- that C word scares us to death-- Bad line. She also found out why she is having so much back pain. The MRI shows an extra Vertebrae. Yes she is an X-man or X woman in this case. We always knew she had hidden power that you would never know. She Bear has a lot of backbone.

Me I am working a lot. Keeping very busy has kept my heart beating. Still staying very positive. Last year Hillary made 88 trips to Dartmouth plus many other places. I think I took her to about half of them. That gives me way too much time, so like Hillary I filled it with more stuff.

Now maybe I can sleep. Got lots of stuff off my chest and sent it on to you. Thank God we have had the best support from all our family and friends. With out you all I am not sure I would have been strong enough. I thank you all for being my care giver.

Vic Nancy, Patrick and Grace, Heather ,Allen, Pierce, Preston and ?, Jon and Xander and especially our heavenly Angel Hillary

6 comments:

Loraine Ritchey said...

My son Chris' birthday would be tomorrow so I know what you are feeling and I understand how your own mother's heart was overwhelmed by outliving her grandchild..... my own mother walks that path.

I am sory we have had to share the horror of cancer and refractory Hodgkins . I think of Hilary all the time and I never met her face to face- just last week I was giving an interview to a young free lance writer she was asking about healthcare and I told her you need to read the words of Hilary St. Pierre - her truth honesty and bravery shines still in her words .thoughts are with you Loraine Ritchey

Connie said...

Thank you for sharing the ups and downs of your family post-Hillary with us. That was difficult for you to write, but so many people were touched by Hillary and her blog, and we feel we know the whole family.

derry rider said...

I really enjoy reading through on this site, it contains wonderful articles .

CJ Kirby said...

Thinking of you and your family this Christmas morning.

Connie

cancer treatment said...

Thanks for sharing about your family. It was a nice read. Keep posting.

Brannon Gerling said...

Here's some new info that I hope can mollify some of the anxiety around the gene-cancer issue: http://brannongerling.blogspot.com/2013/06/breaking-gene-cancer-link-who-needs-it.html