Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Wednesday, March 10, 2010

All Good, All Day

We're only having good news today.
It's a good day today.
I don't know why the sudden change.
It's a huge change in tune from yesterday.
I didn't publish the unfinished rant, but I will. Look below to my gripping from only yesterday morning.
Talk about a mood swing. Talk about a change in circumstances. Maybe it's the spring weather, the melting snow, the sun, and birds chirping.
Maybe it's the fact that yesterday I finally stayed at home doing things just I wanted to do.
Maybe it's the fact I finally bit the bullet and admittedly that though I'm bigger, I'm not THAT big, and put on some nice clothes that fit.
I feel human.
Today I feel accomplished.
I think it's probably because of the great news I've received about Andy.
Andy's little brother is a perfect match for his bone marrow transplant!
Andy has a donor!
Even better, after nine days of chemotherapy, he hasn't experienced any side effects.
Please pray that he doesn't.
His family did shave his head last week in anticipation of the fall out, but so far he's still running around the unit playing ball with his pole.
Last Thursday, he had X, R, and I playing basketball and dodgeball. The boys had to be spoken to for getting too rowdy.
Andy's phobia of dogs has suddenly disappeared!
Before last week when he came to our house I had to strategically put our dog where Andy would not be.
I had no choice. He would ask and ask and hyperventilate if I didn't.
Last week, he tried running up to the therapy dog even though he wasn't allowed to touch her. Molly (the dog)had been in an isolation room and Andy has special precautions.
We didn't get to see Andy this weekend due to family illness. X doesn't like calling.
Hopefully I'll see him today.
I owe him a camera. I had brought him our old digital that is past its prime to play with, but wouldn't you know it, the camera was dead.
I left Andy with him telling me, "You better bring back a camera."
I will, of course, cameras, computers, etc. are great coping mechanisms and therapeutic tools, especially when your stuck in bed.
Andy also LOVES to receive cards.
He'll be at Children's Hospital at Dartmouth for a couple more weeks.
If anyone wants to storm it up and send him some cards, send them here:
Andy P.
CHaD
One Medical Center Dr.
Lebanon, NH 03756
How could you not send some love to such a cutie?
I'm off to start my first photopheresis treatment. Send some love and prayers my way too.

5 comments:

brynn said...

wooooo hoooo! I am so happy for that little cutie!

Anonymous said...

Sending love and prayers your way! You definitely deserve to be feeling well. So happy about Andy; want the same for you...nothing but good health and smooth sailing ahead.
Carol

Anonymous said...

awesome awesome awesome! all around awesome!

Anonymous said...

A friend of mine's little boy Gabriel has been battling Leukemia too. I think he's about the same age as Andy. Here's his website: http://www.gabrielpsullivan.com/

There's an awesome prayer in the upper right hand corner if you want to share it with Andy's parents.

Anonymous said...

I've thought about you all day Hill ... & hoped that you might have a good day. Sounds like you just may have. And I'm pleased to hear the news about Andy ... although I don't know him, it surely touches the heart.

Know that you are both in my thoughts. Stay strong Hill & call if I can do something.

F