I got a call from my doc today.
The very, very good PET scan I had on Monday showed decreased hyper metabolic areas everywhere when compared to previous examinations.
I still have a tumor at the aortic bifurcation, but it is in an area safe enough to discuss cutting back my chemo therapy.
Originally when I decided to treat my cancer as chronic I'd envisioned periods of rest, with NO CHEMO.
This isn't the same vision my doc had.
The options we're now discussing are between a half dose of velbam every two weeks or every month.
When I was on the phone, I was ambivalent.
Now, I'm pretty confident I'm up for the once a month dose.
I'm exhausted.
I've slept all morning, every morning, since monday.
I don't want to have to do that every other weeks.
Luckily I have been able to enjoy my evening.
Thank God for small favors.
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
2 comments:
It's me, HILLARY, with BAD NEWS. My access codes have been taken over! I can't log in. DAMMIT. Who would want to high jack my space?! I'll write when this is worked out.
How dare they. Hopefully a snafu...tech! Yes..I am sure you are experiencing depression...people who go through a .01 amount less than you have depression. It is Ok to indulge a little ( in my book) and then distract yourself with something positive. Enjoy the brownies..you go girl. Remember one little bite will do it..Love ! Deb W.(VRH)
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