Hill's Update

I've lost so muh time being in the hospital.
 My trusty blakberry doesn't have a rise and shine feature for its screen.
You figure with thousand of apps created over the past year, they'd do something for hospital induced disorentation, but NOOOOOO.
Columbia-Pres has managed to block outgoing emails, making it impossible to communicate via my smart phone (aka blackberry curve). This is something they've accomplished since 2004 when I was here as a student.
They should be very, very proud. I haven't been able to communicate my status, but I keep trying!!
I keep writing, snippets, unsure of what is going through.
Long story very short: This all started about Dec. 11. I received my last dose of SGN-35 in NYC at NYU's Langone Medical Center with what appeared to be good results, waited the allotted 3 weeks, then took it again at my home base hospital in Lebanon, NH with my go-to heme-team.
I ran to Dr. O and Ellen, NP in NYC, again, for suspected graft vs. host of the bowel on Dec. 22 after I was sitting on the toilet day-in-and-day-out, feeling miserable, unable to eat, hypovolemic, passing out, being chased down and caught to save my life.
Very dangerous.
I was advised to see Dr. Edwin Alyea, my Dana Farber Doc, The Head of Transplant at Dana Farber, super-genius extrodinaire, to guide my gvhd are.
He gave it to me. It was his problem.
But the holidays, conferences, life, dont wait for anything, including my life threatening disease.
I'd been put on 60 mg of prednisone, a standard dose of 1mg/1kg for GVHD of the bowel which was confirmed by colonoscopy/endoscopy.
When that didn't work I was put on enterocort/budenoside, another 9 mg daily, to target the specific area of the colon I had inflammed.
Nothing worked.
Dr. A had me take immodium around he clock, and i began to eat again. I  was still in a lot of pain, but felt like like I was coming around.
However, with my body exhausted, no reseverves to survive.
 I started to lose consciousness.
I started to wonder if this is what it felt like to die a slow, painful death.
I'd stand and personalize it until one day X chased after me into the bathroom, which he'd seen  J do a hundred times, and asked, "Now, was that an anyuerysm or an arrythmia?"
"What the hell?"
I thoiught to myself, awakening from my near-syncopal episode.
After getting over the shock, ""Where'd you hear THAT?" I thouhgt I'd ask the question. They were finally beoming too much. It'd finally become too much on my little man.
X had been havng a very strong reaction for a long time. My hearts breaksfor him.
I;m so happ ywe've instilled in him muliple......   and I fell asleep.

i think i was going to say a strong sense of empathy? or at least a good vocab?

whatever, today i am improving. Dad, Denis Boivin, a lifelong friend and trooper and i ran to see dr. o at his new office on 60th st. and madison/fifth Ave. right accross from the central park zoo.
Boo-RA.

Ellen came in, took one look at me and confirms my fears: i need to be admitted, pronto. she began working on the admission.

Thats when i passed out, flaccid, in my dad's arms: no 1500 pages of records from the past 6.5 yrs of trtmnt. i bought myself a full work up, at least, that's what i asked for... boo-ra.

my liver was failing, my kidnys were failing, but i was alive!
ive worried since then if i was going to die. i've floated in and out of consciousness, but i'm going to make it, hopefully for everyone, if not, for my family and God to finish God's work.

Chemo may be revlomid or a study drug starting ASAP.
Thats what's up. That was weeks ago.
i just wasnted to be taken care of, and here i am. That was Jan. 24th. Today is Feb.3.