This is Hillary, reporting from 160th St. St; The Munstein Buiding at Columbia Presbytarian Hospital, uptown Manhattan.
This is also the region known as Morningside Heights where, when I was in college, I researched the dichotomy of care received between the ten block walk from where I'm currently housed and Bronx-Lebanon Hospital.
I'm happy to be on the south side, the good side.
I was admitted a week ago yesterday after a routine clinic heck up with Dr. O'Connor (or so I thought) at his brand new office on 60th st, 108 blocks away, where i promprly had a "near syncopal " episode, and got myself a bed here.
I'm not sure what has been getting onto the blog.
My phone works sometimes; others it doesn't.
Passing out, going flaccid in my father's arms wasn't anything either one of us was prepared for. It bought me a ticket in the ambulance here, which I desperately needed.
The week has been testing and strengthening.
My kidney stent was replaced at DHMC, but had all ready begun to fail due to the extreme dehrydration from the round-the-clock diarrhea.
Sun. before we hightailed it to NYC I noticed severe swelling in my cankles. Can't even recognize them.
By Tues the swelling had spread to my stomach.
Weds. this was determined to be lymphadema or my cancerous lymph nodes swelling and draining with no where to go.
Along with my kidneys failing, so isn't my liver, which controls clotting in the bodu; however, it's imperative to know if i have gvhd of the liver. This will effect the chemotherapy regimen.
Revlomid, which I have on a standby, increases graft vs. host issues; the other one does not.
I feel the sickest I've been in a long time, maybe ever. I am a two person assst to the bathroom, but I am not longer losing consciousness!!
My clotting times and kidneys are the worst they've ever been. I really have begun to wonder if I'll die from this.
I've promised to keep fighting for him forever, and that's what I plan on the doing.
Last night, the nurses gave me fresh frozen plasma, a blog product, to assist in clotting, in prepaation for my biopsy.
This am my PT/INR was 1.2 but my hemoglobin had fallen 2 pts to 8, probably dilutaional from adding fluids, but I can't risk bleeding.
I'm getting a CT of my stomach to see if I'm bleeding there; pray something will go my way SOON. There are so many options!
This is also the region known as Morningside Heights where, when I was in college, I researched the dichotomy of care received between the ten block walk from where I'm currently housed and Bronx-Lebanon Hospital.
I'm happy to be on the south side, the good side.
I was admitted a week ago yesterday after a routine clinic heck up with Dr. O'Connor (or so I thought) at his brand new office on 60th st, 108 blocks away, where i promprly had a "near syncopal " episode, and got myself a bed here.
I'm not sure what has been getting onto the blog.
My phone works sometimes; others it doesn't.
Passing out, going flaccid in my father's arms wasn't anything either one of us was prepared for. It bought me a ticket in the ambulance here, which I desperately needed.
The week has been testing and strengthening.
My kidney stent was replaced at DHMC, but had all ready begun to fail due to the extreme dehrydration from the round-the-clock diarrhea.
Sun. before we hightailed it to NYC I noticed severe swelling in my cankles. Can't even recognize them.
By Tues the swelling had spread to my stomach.
Weds. this was determined to be lymphadema or my cancerous lymph nodes swelling and draining with no where to go.
Along with my kidneys failing, so isn't my liver, which controls clotting in the bodu; however, it's imperative to know if i have gvhd of the liver. This will effect the chemotherapy regimen.
Revlomid, which I have on a standby, increases graft vs. host issues; the other one does not.
I feel the sickest I've been in a long time, maybe ever. I am a two person assst to the bathroom, but I am not longer losing consciousness!!
My clotting times and kidneys are the worst they've ever been. I really have begun to wonder if I'll die from this.
I've promised to keep fighting for him forever, and that's what I plan on the doing.
Last night, the nurses gave me fresh frozen plasma, a blog product, to assist in clotting, in prepaation for my biopsy.
This am my PT/INR was 1.2 but my hemoglobin had fallen 2 pts to 8, probably dilutaional from adding fluids, but I can't risk bleeding.
I'm getting a CT of my stomach to see if I'm bleeding there; pray something will go my way SOON. There are so many options!
