Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Saturday, July 9, 2011

How to Create a complementary Health Care Arsenal!


After Five years, I'm finally creating a complementary health care arsenal. I've tried just regular cold process supplements for Hodgkins, a German regimen specifically for me (which regressed my tumor), an Anti-inflammatory and all sorts of other "diets" for health, but I've never found the combination that kept my cancer at bay and provided me with energy for a quality life. I'll take either outcome. I've hears suggestions from protein mixes and health shakes to asparagus and worms. These suggestions are often loss in the roaring tidal waves of medical suggestions and treatment, untouched.

Why has it been so long to create my arsenal and how can you help someone create their own, you may ask?
  
 First, easy, life is tough. Second, I'm about to let you know.

I've been so overwhelmed and inundated with new chemotherapy, treatments, and issues just from my primary traditional doctors that anything above and beyond could push me over the edge into the health care treatment abyss.

Being so stressed I can't add another single  element to my life without my head threatening to explode from the inside out.

But the well-meaning suggestions and options just keep presenting themselves. I'd love to try them all, but hearing them makes me want to scream. I just can't do everything myself to save my life. 

It's frustrating. I have always wanted to try these assistive techniques, but I can only handle doing them when I'm on a break from treatment, in recovery, or in remission, when I'n relatively healthy anyway.

 So all those wellmeaning, loving suggestions of green tea, a tea called whatever "canadian nurse" backwards is, power shakes, or aspragus make me mostly sad. 

I want to try them, but I can't without my strength, energy. My severe chemo brain makes altering my routines a test of my intelligence equal to physics. I don't think I'm the only patient who feels like this, but how to help is the mystery.

Here's a case where cost isn't stopping me. Time, ability, my disease and disability are the barrier. 

What I would love, in a perfect world, would be that anyone kind enough to give ideas would also come and help prepare it. Help work it into the  routine, make a large batch and freeze it so it can be available for months. Lucky, almost anything can be frozen, including bone marrow soup and asparagus puree. YUM. I can hear the squeals of excitement now.

I've been hearing about asparagus for years. I love aspragus. I bought almost a bushel of organic, local asparagus a couple years ago to try it. 

Buying it alone was a chore. I never pureed it to get 2 tbsp (or tsp.) twice daily. That's prep work. Hard work for the disabled. 

I also never was able to drive out of my way to the health food store or naturopathic pharmacy to pick up "aspargus powder." I didn't even order it over the internet.

Could I do it, yes. Is it likely. . . well, five years after its initial suggestion, I'm kind of getting around to it. The asparagus is unthawed from my freezer and in the food processor. 

This is common with patients. The feelings of being overwhelmed with your disease and traditional treatment is common across the board. 

My disease is a full time job, but that doesn't mean stop giving suggestions to help anyone, but if they don't suddenly appear two times daily with the suggested tea don't assume they don't want to try it either. 

But, please, if you have a well meaning suggestion to "cure" your loved one or better their lives, tell them, gauge their interest, and then offer a day and a time that starting it, cooking it, whatever, can be done together.

This makes it convenient; the proven primary motivator in peoples' actions. Its a twofer, people bond and a new trial is started. 

Then, if you're feeling really motivated explore patientslikeme.com and consider setting up your own personnal trial. 

I like this idea. It empowers me, making me feel like I haven't suffered in vain. If cancer overwhelms me, I'll know I left the world with more information for the future, especially if I can increase information where no other study will be done.







10 comments:

Guantes De Latex said...

This is a good blog about health. I am really eager to read with this type of blogs.

Harley Street Psychotherapist said...

Good Information shared about health. But wondering too how people feel once they get to know they have diagnosed with such decease. God Forbid.

Eating disorder said...

Weekends are when people spend a lazy, relaxed day and go overboard with eating more than necessary. In fact, you are overeating without even realizing you are doing it.

cheap flights to lagos from London said...

Well thanks to you so much for such nice and fit ideas, as I was so much worried for my fats, I am gaining weight day by day, all because I do not use to do exercise or something else, but now I will must do these...

Eating disorder said...

Basketball is like war in that offensive weapons are developed first, and it always takes a while for the defense to catch up.

Stock Trading said...

When marrying, ask yourself this question: Do you believe that you will be able to converse well with this person into your old age? Everything else in marriage is transitory.

Commercial Real Estate Software said...

Napster's only alleged liability is for contributory or vicarious infringement. So when Napster's users engage in noncommercial sharing of music, is that activity copyright infringement? No.

Flights to Lagos said...

This was a conviction be told great read, thanks for captivating the time to put it together! Touched on some very good...

Cheap Flights to Nigeria said...

Well thanks to you so much for such nice and healthy ideas, as I was so much worried for my fats, I am gaining weight day by day, all because I do not use to do exercise or something else, but now I will must do these...

lapel pins said...

Could I do it, yes. Is it likely. . . well, five years after its initial suggestion, I'm kind of getting around to it. The asparagus is unthawed from my freezer and in the food processor.