Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Wednesday, August 19, 2009

Just when you thought you had heard it all. . . .


Just when you thought you had heard it all. . . .
Just when you thought capitalism couldn't find anything more to sell. . . .
Just when you thought morality may reign in science. . . . .
articles exposing practices such as patenting genes come out.
According to the attached ACLU article, The US PTO has allowed the patent of genes despite the bioethical ideology that patenting something in nature, such as gravity, is wrong.
Twenty percent of our genes are currently patented (or owned) by corporations.
Among these genes include two genetic markers for breast cancer.
These two genes are patented by one company, giving that company the sole ability to decide who can and can not receive testing to verify future risk of a breast cancer diagnosis.
The company can say when, it can say where, and most importantly, it can set the prices based on its patent.
It is a monopolity of breast cancer genetic testing that only the most terrifying science fiction author could have dreamt up.
And it's true.
Thank goodness there is hope. The ACLU has filed a first-of-its-kind lawsuit citing that patents on genes will halt scientific progress and serve as an obstacle to finding cures.
Let's cross our fingers and pray the right choice is made.
To Show your support, go to www.aclu.org/brcastatement

Apparently somethings do have to be micromanaged by law or we risk having the wrong person "own" the knowledge that could save a life.

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