Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, August 27, 2010

I got a call from my doc today.
The very, very good PET scan I had on Monday showed decreased hyper metabolic areas everywhere when compared to previous examinations.
I still have a tumor at the aortic bifurcation, but it is in an area safe enough to discuss cutting back my chemo therapy.
Originally when I decided to treat my cancer as chronic I'd envisioned periods of rest, with NO CHEMO.
This isn't the same vision my doc had.
The options we're now discussing are between a half dose of velbam every two weeks or every month.
When I was on the phone, I was ambivalent.
Now, I'm pretty confident I'm up for the once a month dose.
I'm exhausted.
I've slept all morning, every morning, since monday.
I don't want to have to do that every other weeks.
Luckily I have been able to enjoy my evening.
Thank God for small favors.


Anonymous said...

It's me, HILLARY, with BAD NEWS. My access codes have been taken over! I can't log in. DAMMIT. Who would want to high jack my space?! I'll write when this is worked out.

Anonymous said...

How dare they. Hopefully a! Yes..I am sure you are experiencing depression...people who go through a .01 amount less than you have depression. It is Ok to indulge a little ( in my book) and then distract yourself with something positive. Enjoy the go girl. Remember one little bite will do it..Love ! Deb W.(VRH)