Hi Too all
You know I always like to start with good news but today I have so much I don't know where to start!! Hillary went to Boston yesterday to see her lung specialist and her Cancer specialist at Dana- Farber. Dr Weiss the lung doctor made her talk and walk around the hospital without oxygen and hitched to a monitor to measure her lung capacity. She never went below 90%! :-) She was told to start exercising more and her stamina would improve now. She has just 1 more Photo- pharisees and she is done. She has been doing that since February, once a week. They take out her blood, filter it, take out something and send that under an ultra-violet light and then put it back in. It takes about 4 hours to do but makes her tired for at least a day. The even better news is she gets to have the 3 tubes sticking out of her chest since February REMOVED. She can actually be back to normal. Can even go swimming now.
Then it was Dr Alyea at Dana Farber time. He could believe that she had so much trouble just last week and could walk into his office. He said that the blood clots have happened to only a few of his patience in his career, How did Dartmouth ever diagnosis it?
Well here is the rest of the story. Hillary and Nancy went to the Dartmouth ER on Labor day. Hillary knew that she would not get quick treatment if she said that she was just out of breathe so she told them she had chest pains. She got right in and the did an ekg and nothing but did an Chest x-ray just in case and saw something so they did a cat scan. The blood clots showed up on that and that is how she was diagnosed.
If they had not found the clots that early the outcome would have been much much worse. Dr Alyea reduced a lot of her meds and gave her a very good check-up report. She is back to somewhat normal.
So after a week from Hell we are on the upswing. Hillary will not look like the bionic woman for Patrick and Graces wedding on October 2nd. Her tubes will be out. She needs to get in shape to be able to dance! She has soccer practice for Xanders soccer team tonight. We have a miracle.
Thank you all for the love and support. You can't believe how this moment feels. Thank you for all your prayers. Thank God he listened. Hope he forgives Hillary for her little lie.
Vic, Nancy, Patrick, Grace, Heather Allen, Pierce and Preston, Jon Xander and especially Hillary
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."