After Five years, I'm finally creating a complementary health care arsenal. I've tried just regular cold process supplements for Hodgkins, a German regimen specifically for me (which regressed my tumor), an Anti-inflammatory and all sorts of other "diets" for health, but I've never found the combination that kept my cancer at bay and provided me with energy for a quality life. I'll take either outcome. I've hears suggestions from protein mixes and health shakes to asparagus and worms. These suggestions are often loss in the roaring tidal waves of medical suggestions and treatment, untouched.
Why has it been so long to create my arsenal and how can you help someone create their own, you may ask?
First, easy, life is tough. Second, I'm about to let you know.
I've been so overwhelmed and inundated with new chemotherapy, treatments, and issues just from my primary traditional doctors that anything above and beyond could push me over the edge into the health care treatment abyss.
Being so stressed I can't add another single element to my life without my head threatening to explode from the inside out.
But the well-meaning suggestions and options just keep presenting themselves. I'd love to try them all, but hearing them makes me want to scream. I just can't do everything myself to save my life.
It's frustrating. I have always wanted to try these assistive techniques, but I can only handle doing them when I'm on a break from treatment, in recovery, or in remission, when I'n relatively healthy anyway.
So all those wellmeaning, loving suggestions of green tea, a tea called whatever "canadian nurse" backwards is, power shakes, or aspragus make me mostly sad.
I want to try them, but I can't without my strength, energy. My severe chemo brain makes altering my routines a test of my intelligence equal to physics. I don't think I'm the only patient who feels like this, but how to help is the mystery.
Here's a case where cost isn't stopping me. Time, ability, my disease and disability are the barrier.
What I would love, in a perfect world, would be that anyone kind enough to give ideas would also come and help prepare it. Help work it into the routine, make a large batch and freeze it so it can be available for months. Lucky, almost anything can be frozen, including bone marrow soup and asparagus puree. YUM. I can hear the squeals of excitement now.I've been hearing about asparagus for years. I love aspragus. I bought almost a bushel of organic, local asparagus a couple years ago to try it.Buying it alone was a chore. I never pureed it to get 2 tbsp (or tsp.) twice daily. That's prep work. Hard work for the disabled.I also never was able to drive out of my way to the health food store or naturopathic pharmacy to pick up "aspargus powder." I didn't even order it over the internet.Could I do it, yes. Is it likely. . . well, five years after its initial suggestion, I'm kind of getting around to it. The asparagus is unthawed from my freezer and in the food processor.This is common with patients. The feelings of being overwhelmed with your disease and traditional treatment is common across the board.
My disease is a full time job, but that doesn't mean stop giving suggestions to help anyone, but if they don't suddenly appear two times daily with the suggested tea don't assume they don't want to try it either.
But, please, if you have a well meaning suggestion to "cure" your loved one or better their lives, tell them, gauge their interest, and then offer a day and a time that starting it, cooking it, whatever, can be done together.
This makes it convenient; the proven primary motivator in peoples' actions. Its a twofer, people bond and a new trial is started.
Then, if you're feeling really motivated explore patientslikeme.com and consider setting up your own personnal trial.
I like this idea. It empowers me, making me feel like I haven't suffered in vain. If cancer overwhelms me, I'll know I left the world with more information for the future, especially if I can increase information where no other study will be done.