Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Friday, July 29, 2011

Get That Virus Gone

I'm finally coming around..... A little. I feel druggy and fuzzy since I've been making myself druggy and fuzzy with little relief, especially from those over worked intercostal muscles, the ones that assist my lungs as I'm try to gasp in air. 

I'm like a guppy a lot of the time. My head lifts up to open the airway and I gasp, gasp, gasp for air. It's very scary (obviously) and painful since this over works the surrounding muscles. 

This is why people with COPD can get a barrel chest, too much exercising of the wrong muscles.

 I wish I had an algorithm to determine how long I'd be out of commission and what exactly would happen with these episodes. I guess I can call this one a virus, and it isn't life threatening, just painful.

Now that I've been treatment free for a while I amm starting to tell what will be chronic pain from side effects, like COPD.

Sadly, I'm still in a lot of pain. Pushing through to strengthen isn't going to work this time. I'm relying on herbal tinctures and my bone marrow soup.

The first soup I made helped.

 Since then, I've had amotivational syndrome in the worst way, probably from those cesamet pills that used to work so well. Now, they're just putting me to sleep.

I have anhedonia (there's one for your inner dictionary) where nothing seems to bring me joy anymore, and I don't know why. Maybe it's a combo of illness and depression. It's hard for me to tell the difference. 
Beef bones for marrow soup

Is it illness or is it depression keeping me in bed? I often tell myself it's emotional only to over tire and sicken myself further. Its hard for me to tell. 

I've been so tired I've only been waking for x, when he wakes up, and catering to his in and out. I see Dr. G Mon. I can't believe Aug. Came so quickly! Here is to hoping this virus gets gone and praying my energy will come back.

1 comment:

lanabanana said...

Those are JUST the bones I give my puppies! Where is the best place you've found to buy them? My Price Chopper carries them, but they are often not very fresh.

Hope things begin to look up, soon!