Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Wednesday, February 18, 2009

If it looks like a duck

If it looks like a duck and it walks like a duck and it talks like a duck, it’s probably a duck.
Here’s the old adage, maybe you’ve heard it before, if you haven’t, you’re hearing it now. Let me flip the script and twist it for me.
If it looks like a quack, talks like a quack, and costs like a quack, it’s probably a quack.
Yes folks, I’m researching alternatives and the very clear topic of quackery, and worse, fraud, have come up again and again.
There are no formalized measures for a patient to safely navigate the web and the world in search of information.
You are on your own: the patient, the family, the friends, the spouse, and the supporters.
If you’ve been where I’ve been, if you’ve loved somebody like me, or even if you’ve heard the urban legend stories of a cousin who has an uncle whose stepdaughter knows a guy that did this, you probably know what I’m talking about.
The CURE for Cancer is EVERYWHERE, but somebody is hiding it from us. Big time conspiracy theory heard around the world.
And you know what, it is partially true. The system, specifically the economic principle of “supply and demand,” is partially to blame. “Information asymmetry” where an expert is relied upon solely for information, which can lead to greed, is to blame also.
But mostly, when you get down to the bare bones of it, greed is to blame, and it exists everywhere including big pharm, the insurance industry, the health care field, and yes, also in miracle cures.
Yes, there are medical professionals who seize on desperation to make a buck. I think these are the worst type of people of the bunch. It gives me chills to think about them. Their actions, to me, are so evil they are beyond my understanding. I can’t wrap my mind around this type. They scare me.
Here is one of my examples. I was referred to a NY doctor by a very trusted friend and confidante, but when I researched into the man, I became incredibly suspicious, despite the referral, due to his practices both professionally as a provider and his choice of how to structure payment.
Word to the wise, if they say they can treat you over the internet, they are probably out to rob you.
This will emerge as a trend. I only know the one who practices this now. For $297 you can get his opinions without ever speaking to him by filling out a questionnaire (you have to pay to even see the questionnaire). If you need to, for some silly reason, speak with him. The price is $350.
I would love to see what this is, but it’s too large of a price for me to do it for my own anthropological research.
This doctor sells manuals of cities with major cancer centers for $20 a piece. Don’t buy it. I think he’s a profit monger. I will mention some suggestions like his, of my own, SOON.
I’m going to start posting my alternative health information on my new blog, Health, Healing and Herbs so I can share with you my information I receive from so many people all across the world. I hope to bring the best of the cultures together.
And one last reason to believe you can find a doctor, just about anywhere, to do anything, if you speak the language, Newsweek recently ran an article entitled “Not Just Urban Legend” on organ trafficking in its January 19th issue. It’s about the research of Nancy Scheper-Hughes who spent more than a decade wandering the world to understand this substructure of health as an anthropologist from the University of CA, Berkley.
I’ve always thought UCLA Berkley of the best schools for anthropology, and speaking of urban legends, what you have heard about the “Acid Tests” are true. I’ll tell you about my college roommate’s father sometime.
Nancy’s research led her straight back to the United States, where surgeries with stolen organs most commonly occur.
Shock yes, true yes. I believe it.
I’m ambivalent about these doctors. I don’t think know if anyone will understand unless you have felt the desperate need for an organ, including the immune system.
That’s one for the ethicists, not for the loudest, most publicly popular opinion, but what I’m saying is this, crazy alternatives exist everywhere. The trick is to sift through the scientifically realistic practitioners and the greedy ones.
I’ll help with a list of tips to be aware of. Just remember, if it “looks like a duck, it walks like a duck. . . . .”

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