Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Tuesday, February 3, 2009

Plan Y

I've been keeping a secret. I needed to perfect my idea and make sure it was plausible before I announced my actions. I'm calling what I'm doing "Plan Y: How to Live While Surviving."
This is a picture of me taken yesterday. I wanted to catch the essence of my new do' which changes in character as much as my mood, but what I saw scared me. I saw my face, looking sick, tired, gaunt, and much older than my years.

This is me, emotionallly and physically spent. I hope it's from the changes I'm making to detox to my body. I think Plan Y will work, but just like every treatment. I'l have to suffer a little.


I think I’ve tried just about everything. I’ve followed the rules and the restrictions. I’ve taken the chemotherapies and radiations. I’ve explored the alternatives. I have a no sugar low carbohydrate diet (okay, so I barely eat sugar or carbs since they feed cancers), and all I got from this is weight loss (I’m now 110 lbs. and holding). I’ve kept a diet rich in anti-oxidants despite how difficult it has been in the face of staying within my restrictions. I’ve exercised throughout my transplant. My chiropractor and a physical therapist have said my musculature is surprisingly well developed for a woman who has gone through what I have. I’ve kept a positive attitude. I do fu-fu affirmations that I NEVER thought I would EVER participate in. I pray and believe I will be cured, but I also understand that I am part of a master plan. I look on the Brightside. I visualize my body fighting and killing my cancer, and still I have suspicious areas in my stomach.
What really is left to do? Any suggestions, I’m up for them. Bring them on.
I’m moving on to plan Y: experimenting on myself in collaboration and with supervisions from my doctors. I’ve created a whole, holistic, nontraditional team which includes chiropractors, a naturopath (who also is an MD specializing in cardiology), and a German lymphatic specialist.
I’ve been advised not to explore alternative options yet because the drug interactions have never been studied. My alternative medications could possibly render my current medications useless or even stop their metabolism and make me toxic.
That’s it? That’s the worst that can happen?
I think I’m going to reeducate myself regarding the symptoms of toxicity and inefficacy of my current meds. This way I’ll know what exactly to watch out for.
I’m sure some of my providers will be shocked by this decision.
I’m not so sure the patients in my position will be.
I need to be able to look back at this adventure and know I did absolutely everything I possibly could have done. I’ve lived my life without regrets, and I’m not going to start going against my instincts now.
Ignoring what could possibly be a cancer reoccurrence in my abdomen for three entire months because I am not able to receive traditional treatment is not a risk I’m willing to take. I’m not willing to let my cancer get a leg up on me. I don’t want it to appear somewhere when I’m looking somewhere else. That’s a good way to get a slap in the face.
What I do know is that the regimen I want to explore has previously shrunk my tumor. I do not know the exact specifications, but I know the size of my tumor decreased so significantly that it was questionable whether or not I would qualify for the LDH study.
My tumor shrunk in the absence of any other regimen.
I stopped using these supplements so as not to interfere with the studies I was participating in, and so they would not interact with my stem cell procedure.
I’m done with the study. I’m now easing out of the dangers zone associated with the stem cell transplant.
I would like to transition back in to my previous therapy that had no adverse side effects, made me FEEL BETTER, and SHRUNK MY TUMOR.
These medications include:
Ultra Hepa Trope II 2 tabs twice daily (liver detox), The foundation for the function of these uniquely formulated nucleoprotein-mineral extracts comes from the antigen-antibody reaction that takes place during normal cell maintenance. The antigenic properties promote healthy cellular division, function, and growth. When a tissue needs support, at least a dozen different compounds are formed that can cause white blood cells to travel together toward the compromised area. They include degenerative products of the tissues themselves. These substances strongly activate the macrophage system, and within a few hours, the macrophages begin to devour the destroyed tissue byproducts. At times, the macrophages can also affect the structure of the remaining healthy cells. The bovine liver PMG™ extract in Hepatrophin PMG appears to neutralize the circulating antibody, thereby contributing to the maintenance of cellular health.
Quercitin-C 2 tabs twice a day after meals (Maintains blood vessel integrity • Decreases sensitivity to allergens • Reduces swelling and pain of arthritis • Promotes circulation • Reduces your risk of certain cancers •Antibacterial properties •Protects the skin from UV damage. See http://www.highlifeformulas.com/quercitin-c.htm)
Ctyozyme AD 1 daily (Source of neonatal bovine adrenal. Consider with chronic fatigue, reactive hypoglycemia, craving for salt, lowered resistance, flu, colds, hypotension, inflammation, lack of ligament strength, ridges in the fingernails and an inability to work under pressure),
Berberis Homaccord 10 gtt .5 hr before other meds BID (For the temporary relief of minor inflammation and irritation in the area of the urogenital tract including cramping, colic and discomfort. http://heelusa.com/) Dr. Lui of the Marino Center in Boston recommends the use of this as a natural anti-inflammatory to ward off cancer.
XRAY 30C 3 pellets sublingual (under the tongue) Twice daily. Remedy works not only for exposure to radiation, but also stimulates cellular metabolism and can perk up behavior and vitality, especially after anesthesia. Avoid using potencies less than 30c or greater than 200c unless you are looking to do comprehensive treatment, as they can bring to the surface other problems which have been suppressed.
Bio 93 10 drops .5 hr before meals 3x daily, and Bio 88 .5 hr before meals 3x daily (both from http://www.reckeweg-india.com/).
You’re skeptical. You’re probably scared. It’s okay.
No, I don’t know exactly what each of these medications are and how they work.
But I don’t know what every chemotherapy I’ve ever taken is and how that works either. I do know with the traditional therapies I’ve spent hours vomiting and months as an inpatient. I’ve had my entire GI tract slough out. I’ve had my lungs and my heart fail. I’ve put myself at risk for more future diseases, including therapy induced cancers, than I can rail off.
I also know, that in doing this, I am informed to the extent I am capable of understanding. I have no one person standing in front of me and disclosing or omitting information to persuade me into a therapy.
I’m familiar with the “kill one save a thousand” mentality.
I don’t want to be that one.
I’m empowering myself. At the very least, I expect this will give me some kind of “placebo effect,” whereby I will feel healthier and more energetic even if this is not correlated scientifically to my new regimen.
I think I will integrate these medications one at a time allowing 7 days to pass before starting another. My process will proceed like this:
1. Quercitin C
2. Hepa trope
3. Cytozyme AD
4. X-Ray 30
5. Bio 93 & 88
6. Berberis Homaccord
Through out this process, I will monitor myself, my vital signs, my side effects daily, if not TID. I’ll note my labs drawn at the hospital through templates I will self create. I’ll note any possible reactions, positive and negative.

As of now, I simulatneously stared Cytozyme AD and X-ray 30. Quercitin C and Hepa trop have all ready been integrated, seemingly safely.

I've spent the last month ferociously researching all the alternatives. I think the route I've decided to take, with continueing this regiment and seeing the Dr. Jacob, my German Lymphatic specialist, is the best way to go at the juncture.

I'm officially all researched out, but I'll share my learnings in the future. Keep praying, my faith has guided me here, and definately keep cheering me on. I'm officially in it to win it.

4 comments:

Anonymous said...

Your determination and methodology and intelligence about making your choices and following through with them is to be admired. Here's hoping that the strength you are showing sticks with you so that you can win your war! You certainly have lots of cheerleaders on your side!
Dianne

Dani said...

I'm / We're behind you 100% and always have been if you need anything just let me know and we'll be right there for you. Luv ya

Anonymous said...

I am all for this route..don't these cancers start w/ toxicity anyway? Where are your providers? Do you want to share? I think this is right! Love, Deb W.

Shannon said...

I am behind you all the way Hillabee!! Always here for you!!