Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, February 5, 2010

Broom Hockey Weekend!

One of my favorite weekends of the year is here! It's Winter Carnival Time, and I'm well enough to play host to five of my friends and their families' from college.
Colette, Laurette, Maggie, Daisy, and Lauren are coming up with partners and kids in tow. I'm in all out suzy homemaker mode and loving it.
I'm Martha Stewart millenial style: budget wise, stylish, and sassy. I have 6 lbs. of grandma's meatballs made in her special sauce cooking in crockpots, one batch of chili, and a tex mex buffet with a six layer taco dip.
All of these will go so well with the mango margarita's I'm bringing out. The mango margarita test batch actually came out last weekend, and again last night. It's definately perfected.
Even better, the best news yet, I'm feeling good!
On big traditional weekends like this I always reflect back on years past and last year was a big old mess.
I'd looked forward to this weekend. I'd prepared. The house was clean. The food was here, and Friday morning I started to get an aura of pneumonia.
Yes, the pneumonia arau. It is absolutely accurate. I've had it enough times. I was not about to be hospitalized with my girlfriends coming up. I called around trying to get an appointment and some oral antibiotics at the local cancer clinic only to be DENIED. There just wasn't the time on a Friday for a patient that wasn't "technically" their own.
I belonged to Dana Farber.
Instead of being seen by a specialist, I landed at my good, reliable Primary Care Provider's Office. I love my PCP. He is always there and available when I need him. His name is Paul Matzkin. He's with Claremont Family Practice if you live in my area and are looking for care.
Finally, I got my antibiotics, but not soon enough. I spent most of the weekend sleeping.
At least my friend's snuggled with me.
I also tried to rush Lexi to her end of season basketball pizza party while sick and over medicated and ended up in a snow bank.
My jeep still has a dent from that snaffuu. Not from actually hitting the bank, but from my husband getting frustrated and putting a little dent in my car.
This weekend should go better, except I am now feeling a little overwhelmed.
For a while now Charlestown has wanted to consolidate their emergency services: the fire department, police department, and ambulance. There were no funds for a grant writer to obtain funds for the project.
Guess who can write grants? Yes, that would be me.
I have written one for Charlestown before which was received. It's one of my proudest accomplishments, and wanted to do it again.
Two days ago my father decided we should write the for a new energy efficient emergency station in Charlestown together. He does the engineering and the energy savings calculations. I write and follow the directions.
Great, absolutely, exciting, except it is due February 15!!!
I have a lot of work to do since the process requires that I write a separate grant for each piece of the project: 1 for the actual building, 2 for the solar hot water, 3 for the solar PV electric system, and 4 for the lighting upgrades.
Thank goodness for cut and paste. Please pray Charlestown can receive this much needed building to improve health care access.
I'm getting to writing now.

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