Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Thursday, May 20, 2010
Live from the hospital
There was no improving my mood the other day. I did everything. I went to the salon for a trim and a style. I bought hair accessories to make me feel pretty while it's growing out. Then when I got home and started playing with my newly purchased products (mousse, hairspray, and putty, oh my) none of which I have ever owned before. I was still disappointed. I'm pretty sure my hair is not the problem. The problem is my face. There is nothing I can do about that except stop looking in the mirror. Even getting some new bras didn't lift me up in either of the ways I hoped, though discovering I am still a 34 and not a 36 helped. Now I have to return the 36s I purchased, but I definately have a full C cup, again something I have never possessed before. No, none of this made me feel better. Hopping in the shower, getting out, brushing my teeth and pretending I started a whole new day didn't even help and I just didn't get it. Yesterday i got the answer regarding what was causing my fatigued crankiness: a hemoglobin and hematocrit of 8.6 and 26. Normals are 11 and 33. I don't just need rest. I need a transfusion! Guess where I am now? Sitting with blood dripping in. I almost could not receive my pheresis yesterday due to the low hematocrit. Didn't have a high enough blood quality to remove the cells to treat. We cut down to 3 cycles instead of four. Today I'm getting transfused to raise my H and H only to go to pheresis and have my new blood removed treated and given back. It's going to be a long day. Thank you everybody who has donated blood recently, the life you helped may be mine. May is national blood donation month. That includes bone marrow donors as well. If you participate in any of this months blood donation events be sure to check the box that you'll donate marrow if needed. You could save a life! Thank goodness j is coming back from his business trip tonight. Yes, I've been solo this past week. X and I had planned to travel to portland ME tonight with my parents to attend my future sister-in-laws pining ceremony. She is getting her bachelors degree in nursing!!! X is iffy about leaving. He misses dad. I am gung-ho to go and start the all-star weekend I have planned which includes the pinning in ME then make-up and glamour shots sat. am with brynn and dani as a Relay for Life fundraiser (unfortunately I don't have any information other than it will be $25) then it's to Dani's house to celebrate..... What for it..... Pregnant pause of anticipation... The year anniversary of her pancreatic transplant!!! Yes, it's been a full year since Dani's transplant! Her A1C, the measurement of her average blood sugar levels, had been 14 for 3 years prior to her transplant. Normal is below 6. Her A1C for the past year was 5!!! She's back to normal. She hasn't experienced any highs or lows that would send her into a coma or psychosis. She no longer has to live in fear or endangering herself or others because of sugar level fluctuations. This is huge to celebrate. I'm so proud of her! Everybody make time to remember and celebrate her this weekend, even if you can't be with us.