Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Saturday, May 22, 2010

Re-Introducing


Thank you everybody who has ever gone out and donated blood in their lifetime.

Getting a blood transfusion is the only possible way to infuse energy into me.

I’m feeling perky.

I’m feeling ambitious.

I’m finally getting around to playing with my new camcorder.

Maybe some of you have noticed the lack of videos on my site.

This wasn’t due to laziness.

Oh no, this was due to chemo brain and months of self punishment for being stupid enough to lose a $300+ camera.

I’m pretty sure that camera with its 68mg SD card is now the property of some lucky staffer at The Boston Museum of Science.

Like they need another one of those.

I’m sure tourists like me are forgetting them in their lockers all the time.

It took a while to stop penalizing myself for being an idiot, then I had to scrounge the cash together, then I had to look around for the perfect camera at the perfect price.

When all that was finally said and done it’d been 3-4 months.

Now I have an even better camera that takes both quality pictures and video with 60X zoom (great for sporting events) that I didn’t quite know how to use.

Technology really improves in a couple years. I have a sony handcam with touch screens and all sorts of settings that I never dreamed with the other cam I just bought a couple years ago.

Today I’m finally working it.

It’s no good if I don’t work it, right?

And honestly, I missed video updates.

Those were one of my favorite parts of the blog. They set me apart from the rest.

And now I have some videos uploaded again.

I’ve accomplished a lot all ready this am.

I was a little worried I’d forgotten how to work all this technology.

With my mind, if I don’t use it I will lose it.

The video taken of me in the hospital bed is the last footage I uploaded from my previous camera.

It interested me since it shows how hopeful I was after my lung biopsy.

I really thought there would be a quick cure to my shortness of breath.

I thought it was a transient acute pathological process.

Thank goodness I didn’t know then what I know now.

I never would have imagined the outcome.

I really hoped for a “funky fungus” that would go away with, at worst, 6 weeks of anti-fungals.

What I got instead was a ailment more life threatening and lethal than the Hodgkin’s itself, six months of photopheresis, and long term steroids.

I’ll post a “re-introducation” to

myself soon, but probably not today.

Probably not this weekend.

I have plans. Big time plans to celebrate Dani!

1 comment:

Anonymous said...

Mornin' girl ... hope you are enjoying a beautiful morning ... I just spent some time catching up on your Blog. Have been streched in too many directions & fell behind. But I'm glad you're back in the video business.

Didn't realize you were at DHC or I might have figured out a way to get up early & visit.

It's gorgeous here in VT ... hoping you & X & J can make it up soon. The flowers are really in bloom ... with the Lupine just starting.

Take care Hill ... stay strong ... & know I think of you often.

F