Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Saturday, March 19, 2011
last week"s history
SAVE LITTLE OLIVER! Bone Marrow Drive; Ashbrook hotel, Hampton Beach. If you wish to get on the bone marrow list, go to any blood drive and check the box stating "I want to be a bone marrow donor.". The workers will take care of the rest. I haven't been writing recently. It suddenly became really hard mon, the start date of bendamycin or bendamustine. My mind was overwhelmed,Not blocked, but not working well I felt swollen and confused. I rubbed my stomach and continued my business. I did my ACS INterview regarding the 2 million dollar maximum and the affordable care Act as it effected me. I dressed up pretty. They even had a make up woman for me. Was I psyched or what?! I was told I had good quotes and sound bytes, whatever that meant. I don't know the movie lingo, but thank goodness I could fake it because by Wednesday I was seeing double and plastered to my bed, my tumors growing in my stomach. God knows exactly what I needto do before my health takes over. Quickly I began to see double. I couldn't text. I decided to go to bed! And I did. I did have a small temp., a cough. Thank goodness I have the loving supportive husband I do, our life is not easy with my sickness and disabilities. He takes over when I am unable. I feel guilty not being able to due my share. He's done all the laundry from FL. I've tried to organizeN but he's keot x in a quesi-routine. Thank goodnessa for him. He's our rock. On Thurs I had a life long (I'm talking since kindergarten 1st day). He took me to my labs and kidney ultra sound then to my appt when WHAMO the bad news I saw coming but he didn't came. " You need a kidey stent" B's mouth dropped I nodded my head. I know. I was so swollen. I couldn't put my loosest jeans on. I could've used a stent weeks ago but I was insistent on joining the fam to go to disney. And I made it!!!! By the time I saw Anna I was beginning to talk nonsense. I was entering into my half world state where I am still part of this world, but I'm comfortably moving to the next, completely releaxed, just the ailments I came in with. The stent was placed with no anesthsia! I was so confused and semi- conscious they didn't want to sedate me. I did complain. I complained I had to pee when the catheter was moved through and that "it hurt" but nurse Scott held my hand. There was always a person holding my hand. These people may have been the most important. They reminded me I was attached to this world and their was love here for me. Sometimes, the most important roles are the simpleist. Eventually, when I was resting in my room I would see figures, blurred figures, like spirits. I do feel close to the spiritual world, but don't be afraid.