Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Thursday, October 20, 2011

Worth the wait?

I waited 2.5 hours before I ever saw Dr. Owen Oconner. I'd been warned about his chronic lateness issue prior to ever meeting him, prior to ever accepting him as a doctor. This flaw is an imperfection I am willing to allow, especially since his tardiness is probably because his genius brain wondering, hopefully closer and closer towarda finding the cure for cancer (okay,okay, maybe I'm fantasizing a little). In my experience the best in the business will be late. They assess thoroughly, which means slowly. They take time to reassure patients and answer questions. This is a problem I'd been warned about. All the little tricks I know to reduce wait times I've tried and they failed such as getting the first appointment of the day or scheduling for right after lunch knocked some time off failed too. But those three hours were worth it when he came in, and after a quick recap of my history, announced that I could stay on Adcentris for an entire year and may see the positive benefits for years!! He canceled the pet scan scheduled for mon, pushing it back two weeks so we can see the effect of all four treatments. Having the scan on mon. Would only show the effect of three. From there he started talking about other complementary options stating that he wanted to keep my away from "chemo junk.". My heart melted. I've found a doctor that gets what I want. He even has a contingency plan for the scary "what ifs.". Doctors before all wanted to "take one step at a time" or if I was in remission they wanted to "what and see.". I hate being forced to allow cancer to grow in me with no plan. Not this guy he probably has back up plan upon back up plan, and if giving other people the same was what made him rhree hours late,I'm okay with that.
Sent from my Verizon Wireless BlackBerry


Valerie said...

GREAT to hear you're being seen by a great doc. xo Valerie

Anonymous said...


Anonymous said...

Glad you finally got to see O...he is worth every minute of time spent waiting.....and you are right....he always has a back up plan
bekah's mom

Chris said...

Yeah, the wait is really long! I've waited over 4 hours before, just had to roll with it. He put me on one of his creations and while skeptical, I got a year out of it when I was thinking I'd be lucky to get a month (saha/niacinamide). Anyway, glad to hear you're doing well! Keep it rolling :)


beauty said...

I should say only that its awesome! The blog is informational and always produce amazing things.Thanks for sharing.