Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, November 18, 2011

Hosw to Move with Your Doctor/ or Dr. O is on the move!

Here's to all the hodgers who want to keep track of the leading Doctors Stateside: Dr. Owen O'Connor is moving back to Columbia-Pres. He believes this institute has created a winning balance of research and treatments that will allow him to bring more drugs to market for us as quickly as possible. If you'd like to follow him, simply send him an email. This is the copy of the one I sent.For everybody else, This similar form letter to the right people can help you follow a doctor to any institution, of course, if the insurance companies' okay it first. Hi Dr. O or whoever I may be speaking to, My name is Hillary StPierre, DOB 8/16/82, SS ### and I've been seeing Dr.o every 3 weeks for adcentris treatment. I would like to go with him to columbia-pres. I'm getting my next dose near home @ Dartmouth. However, my last PET showed mixed/questionable results. It's our plan to be treated locally, have my kidney infection heal and get a repeat scan, probably 2 weeks after my Dec. 19 therapy, which would have us needing to meet early in the new year. If this is acceptable, please schedule my next appointment on a Thurs as you see fit. If you're no longer treating patients on this day, again, call and we'll arrange an appt. (***)***-****. Thanks and happy holidays!!! Hillary. It's important when contacting health professionals to understand what they will need to help you. I always introduce myelf like they have no idea who I am, it's safer, and give info so they can look me up in the system. Your name, spell it if it's weird, date of birth, last for digits of your social security #. Those are very helpful. It's like google key works for your health records. At least then, you know theyr familiarizing and you won't get lost. Then If you don't hear from theinstitution by the end of the stated timeline. Call them. Call them whenever you have a question, you're the consumer. Use those benefits, but definately, call if you feel you're getting forgotten. You may be. Hospital communication is improving but slowly. Follow your gut and don't fear being pushy. Fight like your life depends on it.
Sent from my Verizon Wireless BlackBerry

1 comment:

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