Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Wednesday, October 28, 2009

Out of The Baldie Business

I have a virus: headaches, throwing up, tummy pain, hair raising chills, sweats, and a cough that may send up my entire fibrotic lung. 
But no pneumonia. 
No air leak either. My tube is out! 
I still have a small pneumothorax that will eventually fill, solidify. That portion of my lung wasn't doing any air exchange anyway. 
The tube inside my chest was 12" long.
I closed my eyes, gritted my teeth anticipating the pain then Johnstone yanked and kept yanking. 
I had a foot of tubing in my chest! That's crazy. 
Do you think I could get into guiness under world's toughest woman? I have more examples.
 I'm not so interested in world's cutest cancer patient. It's been four years. I'm not the baby on the scene, and I've been seeing all sorts of evidence bald is beautiful elsewhere.
 I also think I an about to be out of the baldie business. I keep thinking back to the day after my first transplant when dr. G walked in and said "hey, you're in remission. See you in three months."
 That was april 23 2007. I even remember the date.
 What has to be done to get that convo again? How do I get to a "hey, see you never?".
 I have gotten a leave until my appt the fifth in boston. I'm sleeping, eating oranges, drinking tea and pouring all sorts of herbs in my pastas to help prep my body. 
Now let's not pressure me to leave my house to join the real world. I'm happy here at least until halloween. I may go to Hallowesta as a surgeon (mask and gloves, I think so) or a patient (wheelchair, oxygen, pjs) depends what shape I'm in. 
Either way, I'm looking forward to Nov. 2, my very first Emerging technology meeting with the Department of Health.
If anyone has any ideas, suggestions, complaints regarding how their hospitals current electronic intranet is structured please let me know. I'll get your opinion heard.
Today, I'm dragging my achy ass to Boston to see Dr. Dana, The eye guru, oxygen, mask, and wheelchair in tow.
Maybe J and I will find some way to enjoy the dreary trip. We've both been eyeing a quick trup to the mall.
It's never too early to Christmas shop. We have lots of kids in our lives.

1 comment:

linda keenan said...

but ... you ARE the world's cutest cancer patient! i have had both men and lesbian friends commenting to me about you!