Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Monday, October 26, 2009

X and I had our first playdate in forever. Being in the hospital 3 out of 4 weeks doesn't lend to chillin' with the mommies' club.  Dani and I had mom dates every sunday all last year until her pancreatic transplant and my cancer relapse.  Then life happened. Hopefully now we're back. Her doc put the kabosh on working due to H1N1. I hear odds of survival are 4 out of ten for patients like her. I don't know my odds.  I'm special. Just when you think I'm knocked out, 5 days later oxygen is gone and I'm back to playdates with coffee and donuts.  And come to find out, vna's crazy suggestion I do my own dressing is doable. Not comfortable. I have to twist myself around like an owl. But not impossible. I can shower. I bring my drain in with me, work around it.   The whole problem breathing was really hampering my abilities.  Of course I'm home and who has a wheezy junky cough? That's be x. Ad who has a pneumonia flavored nasty cough.  That'd be me. I'm iffy about if this deserves a phone call to my MD or NP. Maybe the cough is from the pneumoa closing. Either way, I'm paranoid. I've suffered too much for too long to be messin around, but then again, I do have an appointment tuesday. Maybe I could push it?

2 comments:

Dani said...

We had some much fun... You don't know how much you miss the little things till you don't have them. The boys are counting the days till Sunday already...We missed you guys so much

Anonymous said...

Please don't mess around with pneumonia. Better to call...
Carol