I think I may change my name to Murphy. This way everybody can have my circumstances explained to them quickly and easily, “This is Murphy, I’m sending her to you for a. ... stem cell transplant, wedge resection, radiation therapy, picc line insertion….. Just to warn you, everything bad that could happen will with her. It’s just Murphy’s Law.”
This way people won”t be blindsided when they try to do a relatively easy procedure, say a thorascopic biopsy, and have it plagued with rare, terrible side effects like air leaks, pneumothorax, severe dyspnea (that’s shortness of breath), and not to mention the fact that the biopsy yielded NOTHING to guide treatment.
Sounds like Murphy’s law to me.
Yesterday I finally did get a tidbit to help my lungs: Use my oxygen. This will help with the re-epansion of my lung by helping with diffusion across the lung tissue. The higher the levels of oxygen in my blood stream the less my lungs have to work.
I hadn’t been using my oxygen frivolously (only when I couldn’t breathe, folks) since I thought overuse of oxygen could incite these crazy free-radicals that cause cancer.
I know they sound like good cells, and I always did think my body was one big free radical, but their not.
I saw my DHMC team yesterday, I was blessed with both Marc and Anna, only to learn that no, the area of my lung with the pneumothorax may never heal. I may always have a little pneumo.
I’m seeing a pulmonologist that will probably say to just wait and watch my disease process as long as it doesn’t show signs of progression.
Alyea was so worried about my lungs and bronchiolitis obliteranshe was ready to send me for lung transplantation.
I think I’ll stick to my inhaler and expand my “pneumowacky” alternative meds, seeing as modern medicine has very little else to offer.
Today, SURPRISE, I have a PET scan.
I’ll keep you updated.