I've been a little hesitant, unknowing what to post with the sudden onslaught of attention. I don't want to add extra stress on anybody, but I am having fun! Broom hockey with my College of New Rochelle girls and now..
I watched X and his team come back from having 4 points to the other teams 16 IN THE 1ST HALF! We won again 25-23. The boys woke up after J called a time out and began their scoring streak, I made it to another weekend, and another special one too, it's my high school homegirls 30TH birthday. After this week, Thurs when I get my chemo, I am resting and hibernating. Tuesday I'm selling my jewelry for the first time at PINK pint night!! Come see me at the Marriot in Keene 6-9. Weds. I'm running to national eye guru Dr.Reza Dana in Boston. He is in charge of my Anakinra trial. This is possibly the cure for GVHD eye pain!!! Those who asked, here is your answer. It is an off-label trial so it is out- of -pocket for $150 every three weeks with a visits to Boston every six weeks, but anyone who has suffered knows its worth it. Gvhd of the eye is possibly the most excrutiating pain huanly possible. Thurs. I finally get chemo. Then I sleep so I can get back on schedule and receive chemo again feb 28th or so, it'd be That monday anyway. Please say prayers.
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."