Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Saturday, December 5, 2009
think I should have prescribed myself a nyc wkend a while ago. It's just what the doctor should have ordered. I had started looking around my country town and thinking hmmm... Maybe I should start looking like them. I don't even know where I get this style from and all I do is stick out. Well I actually look perfectly at home in manhattan. There was a time I strived to look like a fashionista manhattanite. Guess what? I've made it. I'm perfectly comfortable being me here. I also once wondered qwho those peope wqere speaking at the podiums at rallys *nd protests and thought oh how cool I want to be like them. Low and behold I can check that off of my things to do list to. Now that I'm healthy0 enough to leave my house ill start speaking again on weds. I'll bw doing an "ambulance tour" which is a media campaign for health care reform that entails trucking all over the west side of nh (from keene to hanover) and speaking to all local outlets. The goal is to re boost interest un health reform as it jas stalled in the senate. Unfoetunately itts going to take more than a couple of interviews to reignite interest. With my neqfound energy, I have ideas though. I think it's time to hook up with Linda and Co. At the huffington post and finally make my u-tube commercials with all my videos. Really, a girl shouldn't be stalked for her signature to assure I'll be paying for treatment when she can't breathe. That's just wrong. Patients should see their doctors more on intake than the admitting secretaries, especially if they're battling a life threatening problem at that very moment, but that's not how it works. I need to verify I'm financially responsible before I get assistance breathing. Maybe it's time to open up my medical records and billing information for proof. I certainly have enough to prove what a huge mess the system is, I just don't know what to do with it. Who wants it? Any takers? It's all organized. It's semi-interpreted.S