Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Tuesday, December 8, 2009

Update From Vic

Hi All
Merry Christmas and a Very happy New Year.
Hillary and Brynn decided their favorite color is Sparkle. A day in NYC will do that to you.
Things are starting to look like we may get back to normal. The day before Thanksgiving Nancy and Hillary had an appointment at Dartmouth to discuss the lung specialist results. She has 30% of a normal 28 year olds lung capacity. They really don't have a plan to improve that figure. Nancy really pushed hard to get them to get a new plan. Of coarse it's more medications but no steroids. The steroids would help but they believe that is why the cancer came back last time. Right now she is cancer free. She has appointments today and Thursday. She has been asked to speak on Wednesday for the health care Bill with the cancer society. She is trying to get back to normal too quickly. After all it is coming up on 4 years-- why rush??
I have attached some pictures from this last weekend. Nancy had to work in New York City. They negotiated a deal with the Waldorf Astoria on Park Avenue. We found out how the rich and famous live. I'm glad we are home!! I would never make it as a socialite!!! We had a great weekend. The most excitement actually came at the end of the weekend when we stopped in New Rochelle where Hillary went to College. We were greeted by 5 girls, Daisy. Kiki, Lorette, Collette, Yanellie, from her college days and some of their families, Chris, Isaiah and Victor. Her face just lite up when she saw them. They set up a phone tree just to say that Hillary was in town. They group looked like a U. N. convention. A very diversified group of friends of nationalities that had Hillary in common. Hillary has that unique way of collecting friends. Once you know Hillary you want to be a part of her energy and spirit and she makes everyone feel like they saw each other just yesterday.
I don't think any of them new how sick she has been for the last 4 months. She would not bring out the oxygen no matter how bad she felt. She does not want to show any signs of the sickness but the graft Vs Host disease is very apparent. Her skin color is the first give away. She has an eye specialist, lung specialist, cancer specialist and several more. She was able to just leave these issues behind and see the Rockettes at Radio City Music Hall and do shopping in China Town, Macy's to Sax Fifth avenue.
We plan to have a normal Christmas, quiet and healthy with lots of fun. "Life is Good".
I have been really down for the last 4 months and want to thank you all for carrying me through the tough times. I hope I can return the favor sometime. We appreciate all the great friends that we have.
Merry Christmas and Happy New Year
Vic, Nancy, Patrick & Grace, Allen, Pierce, Preston , Heather, Jon, Xander and especially Hillary

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