Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Thursday, January 15, 2009

GOT CANCER? Young Adults Needed

Would you like to be a part of bringing the best possible treatment and care to young adults with cancer? Then we need your help!
Please ask your doctor to participate in a short survey from the LIVESTRONG® Young Adult Alliance to assess how oncology services are currently delivered to, or planned for, adolescent and young adult cancer patients. Please share this link or print out the survey and give it to your doctor. Together we can make a difference for young adults with cancer!

Podcasts for Young Adults with Cancer:The LAF has launched a series of 13 video podcasts where AYA survivors can hear the experiences and advice of peers — including many of you! — about a wide variety of cancer-related issues and concerns. To access the video podcasts, click below:
Young adults with cancer between their teens and early 40's face unique concerns such as fertility, body image, cognitive function, long-term effects, education, insurance and employment. Young adults with cancer deal with distinctly different issues based on developmental life cycles of their age group, still aspiring to actualize their goals and dreams which many older cancer patients have already achieved. Young adult cancers may also have different biological factors that are now being studied so better treatments can be developed. Cancer centers are establishing young adult cancer programs and young adult oncology is becoming a specialized area of clinical focus.
Peer support for young adults facing cancer and serious illness is often weak and can lead to feelings of isolation. While healthy friends are off living their lives, a cancer diagnosis challenges the natural progression of maturity. College students may find themselves unable to keep up academically, some may lose their sense of independence by having to move home with their parents, and dating and relationships present new challenges. There are additional problems for young adults that are married with small children of their own. Unfortunately, many young adults have no health insurance and are often delayed in their diagnosis, or sometimes not taken seriously as potential cancer patients.
When Vital Options was founded in 1983 it was the first and only support and advocacy organization for young adults with cancer. Today though, there is a large movement on behalf of this age group providing myriad of services, programs, and networking opportunities conveniently linked on the right side of this page.
In April 2003, Vital Options launched National Young Adult Cancer Awareness Week®, and organizations and clinical institutions throughout North America partner to raise awareness about the unique needs of this age group. For more information about young adult support resources, click here.
In 2006 The National Cancer Institute (NCI), in collaboration with the Lance Armstrong Foundation and the LIVESTRONG™ Young Adult Alliance, has developed the Adolescent and Young Adult Oncology (AYAO) Progress Review Group (PRG). It is the first public-private partnership of its kind and is composed of prominent members of the scientific, medical and advocacy communities. Its purpose is to establish a national agenda for adolescent/young adult oncology.

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