Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Sunday, January 25, 2009

Social Savior Faire

The way I’m made is not a mistake. It’s all for a purpose. It’s all part of the master plan, cancer included.
At least this is what I think.

I hope I can find a way to put al the pieces together and make an impact. I want to contribute something to society. I don't want my disease and my sufferering to be in vain. I want everybody to learn as much as they possibly can from my experiences, so maybe in the future they will be prepared. Maybe, in the future, their fear will be less.

I don't think the culmination of my talents is an accident. I don't think Hodgkin's attacked me in a pointless fit of rage.

God is the puppetmaster and he's pulling my strings. I'm just going with the flow and ENJOYING it the most I can.

Yes, wherever I have to be, I'll find a way to enjoy it. It's all part of my joyful social savior faire tactic.

Let me give you an example of another person who tries to make the best of bad situations.
I have a Haitian friend. That’s just about all you’re going to get about them. Let’s call who it is Keisha, to make this story easier.
Keisha is social, gregarious, with a giant, trustworthy smile, and sparkling child-like eyes.
She is the type of person whom people enjoy. She can talk with just about anybody and the conversation is generally enjoyed.
Keisha wanted to go to Haiti to see her family. No problem, except, she wanted to go immediately, and she had no passport.
Going to what is categorized as a “fourth world” country from the US shouldn’t be a problem for anybody.
The problem is getting back in.
She went anyway.
Later, when I spoke to our mutual friend, that friend said she “lost” her passport in Haiti.
What?! Don’t play me. Who LOSES their passport in Haiti?
No one. You guard that, consciously. It’s your lifeline to civilization.
“She sold it. I know she sold it down there. I wonder how much she got.” I thought.
Our friend gave up the information easily. She knew I’d caught on.
She said our girl had left the US, knowingly, without a passport, and talked her way back into the country when she wanted to come back.
Moral issues, security issues, whatever other issue you may have with this aside, those social skills must be damn good.
Mama possesses the type of knowledge that can be used across borders, in all countries. It’s a knowledge that allows her to navigate through life knowing she will be able to receive what she wants. It’s the knowledge of how people work, and how they’ll respond to their particular actions.
Figure this out, and the world is yours. I’m still trying, so if you know the secret, feel free to fill me in.

I hope I'm getting it, piece by piece. I think every word of wisdom and love you all send me helps understand the world better. I hope I help you understand my world too.


saralup said...

helo Ms Hillary! i hav bn pointd heer by th Ever Lovly Bekah. yuor amazng intense riting jst pulls th reedr rite in yuor living room. i'm a photographr, visul, so wrrds dont come eezy. i wish i had grate inspiring helpfl wrrds for yuo. alas, i can only say tthat ths amazng fierse spirit yuo posess wil obvsly see yuo thru. i am snding yuo my biggst bestest HOPE to yuo fr compleet totl sucess, truth. HEERS TO HOPE!

Anonymous said... have absolutely no idea the impact you have on everyone who has ever met you, who knows about you and who reads your have to be one of the most courageous people I have ever had the pleasure and opportunity to be mildly acquainted with.........hang in have made such an enormous difference already, I can't wait to see what's next.......

Anonymous said...

Hi Hillary, I have been guided here by Bekah as well. My husband was dx'ed this time last year w/HL as well. I read through your story and I think that you are an amazing woman. I wish everything good for you. You have many people cheering for you through your journey. God Bless you, Maureen

Anonymous said...

I talked with my friend Fr. Ronald and told him to ramp up the prayer groups! We are praying for you every day, so never get down, because Savannah is praying and rooting for you!

jenny said...

hi Hilary,
my husband was diagnosed in feb 08 with Hodgkin's stage 2b. He has just had a clear 3 month scan and is in remission. We have changed our diets dramatically and I have even started studying nutrition. One thing we have learnt is that sugar aids in tumour growth so thats' one thing we cut out completely (we still eat fruit because that's natural sugar). We also juice everyday - cucumber/carrots/celery/ginger/apples/beetroot etc ...... extracting this means that it is much more absorbable in your body and feeds all your cells. (also a gr8 way to detox) We read labels VERY carefully and stay away from any unatural foods and preservitives.
I really pray that 2009 will be an amazing year for you especially because you have been through so much. I know people think just because my husband isn't having chemo anymore that he is back to his "old" self but as you said in a previous post ..... you are never the same. This is the new normal.
wishing you all the best
cape town. south africa