Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Friday, January 2, 2009
Update From The Family
Hi To All>>> We Hope all your holiday celebrations went well. We have a lot to be >>> thankful for in 2008 and more to look forward to in 2009.>>>>>> Hillary had a wonderful, strong appointment this week. She went to >>> Dana Farber on Monday with a couple of friends that are teachers and >>> were on Christmas break. Her test all came out well. She will have >>> more labs on tuesday and then on Jan 12 she will have a pet scan. If >>> the pet scan is clear she will be in remission. Jan 18th will be her >>> 100th day and also her rebirthday from her 1st transplant. What a >>> finish of 2008 and start to a new Year!! We are all very excited but >>> are holding our emotions in check as she has had several pet scans >>> that has put her in remission but none have lasted more than 3 >>> months before the cancer came back. She still will have a lot of >>> restrictions after the 100 days. She will be able to eat a few more >>> things. She is ready to come out of her home confinement but will >>> only be able to do a little more than she can do now.>>>>>> Hillary has taught us a lot in 2008. She was scared to death when >>> she found out in April that the cancer had come back. She kept a >>> positive attitude, Switched her doctors and Hospitals, found a bone >>> marrow donor and did a second bone marrow transplant. Her upbeat >>> attitude, killer smile, outstanding outlook has given me a whole new >>> perspective on life. I think she has a personality that is >>> infectious. She can spread it quickly to whoever she is with. With >>> that she was as low in confidence in late july and August. Her >>> financial battle with the health care industry became a war. The >>> people she had touched came out if force to help. What an impact!! >>> She found out how many people were pulling for her. They helped the >>> financial situation but this was the turning point in her healing. >>> She new that with this much love, many people showing her that she >>> could make a difference. In August or September Fr Stan called all >>> excited 1 evening and told Hillary that he talked with GOD and god >>> told him that Hillary needed to touch more people and tell them >>> about being positive. Believing in god and passing along her >>> attitude became her.>> Byrnn and Nichole were able to see Hillary work a room when they took >> her to Dana-Farber. The waiting room at a cancer hospital is a scary >> place. They watched as Hillary talked with her piers that were in >> many different levels of cancer. She changed the whole atmosphere in >> the waiting room in 10 minutes. She had people talking about cancer >> and what they had already been through. She transferred her positve >> vibes to 50-75 people in the waiting room, She handed out her Baldies >> Blog cards to everyone that asked for them, and there were a lot that >> wanted them. How can anyone in such pain look past it and try to >> help so many others. Her college friends have always told me she was >> something special. She just brought the best out of people. She was >> not stopped by racial barriers or statis. You have white, black, >> Asians,Spanish, indians and Hillary. She is now partially european as >> well as multi cultural. She will not be stopped by Health Statis either> I want to thank all of you for helping us get through a very tough > 2008. I honestly believe that all of you had a hand in getting us to a > better place in this world. I don't know how to thank you all for your > tremendous support. I do know that 2009 will bring out the best in > us all.As the economy gets tough it will talk a positive attitude to > show us a new way.> May 2009 be the best year of your life and each day be special.>> Lots of Love.> Vic, Nancy, Patrick, Grace, Heather, Allen, Pierce, Xander, Jon and > especially Hillary