Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Thursday, May 7, 2009


Today is vacation day!
I’m calling it “Vaca-day,” like a national holiday.
It is definitely a holiday to me, marking the first weekend that I can venture beyond the confines of my home or hospitals (sometimes I can’t tell which one is which anyway), safely, with permission from my super-specialist.
Yes, Brynn was right, I’m certainly behaving like a kid looking forward to Christmas.
Since I’ve been behaving this way, my son has been as well.
And since this kind of excitement must be contagious, Jon got in on the action too.
Xander, Jon, and I went through all our old CDs last night to DJ the trip. Xander has a newfound love and fascination with music. He’s interested to hear the type of music mom and dad shared before he came into the picture.
We organized those into three different CD holders that Xander can pick from throughout the trip. Yes, we had that many, or should I say, Jon had that many. He was a major CD collecter before and during our early time together.
Xander and I also packed our clothes together. X has always been a motivated packer. HE was two years old the first time he tried to independently pack for a trip to Florida. He had his clothes folded and placed in outfits all by himself.
This trait must be from both nature and nurture. He’s been organizing to pack ever since, if he really wants to go somewhere and he feels I’m slacking in any way that is.
I also had the time, the energy, and the ability to organize myself for the trip, which as you can imagine, is no simple task.
Of course, I’ve been packing and traveling back and forth, back and forth, and back and forth to specialist appointments for almost a year now, but I’d never had the time to organize my needs so well.
But now I’ve done it! I’ll give you more on how to be a super organized packer in the wake of disease later.
Thank you steroids for making this all possible: the ability to plan a trip, feel decent, and pack like the meticulous mom I am.
Of course, I probably have still forgotten something, but whatever that something is, I’m sure we’ll be just fine without it.
We’re not hiking The Appalachian Trail or anything, we’re just taking a quick drive to Bean Town to meet with my Doctors as scheduled and then up the coast through NH to ME for a family weekend celebrating Grace’s graduation from Nursing School.
You may have read her comment the other day, and Grace became a nurse because of me!
I wasn’t going to say that out loud without discussing it with her first. That assumption would be just a little narcissistic to assume that a person would make a major life decision, such as a career, due to my influence, but she said it!
It’s true. I am so flattered and excited.
Grace and I were going down memory lane this past Monday discussing where we were during her high school graduation three years ago, and guess what, we were together, doing things very similar to those we are now.
I took her to get a manicure and a pedicure. We had gone to NYC for the weekend to celebrate the end of her senior year (we had planned to go to NYC last weekend, but with scary outbreaks of weird flu I decided to hide safely in the country).
Then I went to her graduation with her, followed her home, and helped organize her party.
Now we’re doing it all together again, only for college, and a degree in NURSING!!
Go grace, the world needs more nurses like you.
This morning I’m up, I’m ready, I’m rearing to go.
Jon and I decided that I will be leaving my beloved laptop, Jaunes, behind. He is big and bulky and does not travel well.
I will be bringing my blackberry with me, which I received as a present from some fine man earlier this year.
I have not named my blackberry yet, but “Cherry” comes to mind. She is a pearlescent pink and functions as my complete electronic assistant.
You will be seeing postings from me this weekend, but understand, they will be some of my first as a “3G Family.” I think that is what the commercial calls us anyway.
I know I can get the text in, but as far as pictures go, we’ll wait and see on that one.
We’re certainly up for the adventure and the challenge.
I’ll keep you posted on how the convo goes with Dr. Alyea, my super specialist, today, regarding the possibility of my T-lymphocyte infusion in June.


B. said...

Have SO MUCH FUN, HIll, X, and Jon -- You guys deserve it. Hoping for mucho sunshine, in Maine for you guys...

Sending Love,

Anonymous said...

I'm sitting here with chills Hill ... after reading your Blog ... & I'm hoping you & those 2 lucky guys in your life, have the vacation you've been waiting for. I join Bekah in wishing you only sunshine & warm weather. But I also want the trip to the doctor to be a good one also.

Take care of yourself Hill ... be well ... but most of all ... enjoy yourself.


JANE OWEN said...

OMG...I love Christmas.

Have fun,

Anonymous said...

Wow Hill!!! These past few posts of yours are so amazing to read (hear)!! Im so happy that youre feeling so great!! My cousin is back... :) Love you girly!!!