Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Wednesday, July 7, 2010

Droid Life (Coming Back Around)

I'm finally coming back around.
I try to, theoretically, give myself a week of recovery for every day I spent as an in-patient.
I heard this is the typical recovery time for patients somewhere, and it makes sense.
This would allow me four full weeks of lying around on the couch without contribution.
Theory is very different than real life.
It hasn't even been four full days, and I'm all ready trying to jump, full swing, back into projects.
I hate watching J scramble around kingdom come making sure the house is arranged the way we like it.
I feel useless.
There is no worse feeling than that.
First things first, I need to get some technology back.
I'm having withdrawals: headaches, irritable mood swings. I NEED a smart phone.
It's no longer a want.
I'm too weak to lug around a laptop.
I'm too overwhelmed to remember everything I'm required to, especially my full time appointment schedule, along with X's camp/soccer schedule, J's work/softball/appt schedules.
No thank you.
My mind didn't even like making that list of responsibilities.
I'm ready to go back to sleep all ready.
Instead I'll learn to program my new droid which we got in replacement of the curve my cat killed.
This way I'll have my electronic brain back and I can go back to fooling people that I'm a functioning, semi-organized individual.
I missed the HEIPI teleconference meeting yesterday that took place at due to the loss of my schedule.
Can't have that happening.
The Droid and sprint service are on trial for 30 days. I'm not so impressed with having to learn another technology.
I liked my curve, but c'est le vie.
Today I'll be reading manuals and programming.

I may also be packing a little in hopes of a future (cross your fingers) camping trip.
My family has an annual tradition of going to the White Mts. for two weeks every year in July.
I'm not sure what, exactly, I'll be able to tolerate. That information relies a lot on what Dr. G says at our appointment on Thursday regarding whether I'll be staying with the velban, decreasing the dose, or stopping and changing therapies all together after that debacle last week.
What I do know is if I were to leave for two weeks on Sat. I'd need to be packing for us today, and that's not happening.
Hopefully what's happening is I'm getting to the pile of dishes, finishing the pile of laundry, starting packing, and lying around doing my art and talking on the phone FINALLY catching up with my girlfriends.

1 comment:

linda keenan said...

so happy to hear you are getting some of your energy back!