Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Sunday, July 18, 2010
Sweet! I am back on! Large aNd in charge with my new berry. And not a moment too soon as I'm suffering my first bout of insomnia with my crazy med regimen. I have started taking ritalin so I can have energy to enjoy my days but this lends to an upper/downer cycle. Ativan at night, amphetamines during the day. I always wondered howq patients end up where I am now, with an open license to the pharmacy. The curiosity was more judgmentaal than anything. "They're just functioning drug addicts!" I'd scoff as I looked at med lists. Little did I know how much pain and suffering occurs before anyone practitioner prescribes any one med. It isn't an overnight free for all, but it is what allows me to live. Its what has allowed me to lounge aat the beach, sit by the campfire and sleep in the woods for the past week. Its what has kept life "normal" for me, just like my bactrim, acyclovir or folic acid are needed to keep my red blood cells healthy or my immune system bolstered for a fight. I'll never again judge. I'm sorry I did, but now, I think my sleepy meds are kicking in. I'm still camping and plan to until I get chem fri. Jon and carter joined x, lex, my mom, grandpArents and I. We also have the extended "wilder side" of the fam here for the ttaditional vaca. I'm excited but on edge and jittery trying to manage my steroid and med adled ass while juggling maniac excited kids who see so much to do....