Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Sunday, June 27, 2010


I haven't been able to find someone to drive me to my technology meeting tomorrow.
I need transportation pretty frequently and don't like to ask for non-treatment related favors,
But tomorrow the Health Exchange Information Stakeholder committee is getting together to conceptualize the actual site!!!!
It's going to be a brainstorming session where we all throw out our ideas of what we'd like to see and how to see it function.
I could call in, but
I think it's important to be there in person to get the project experience.
Anyone?. .. . . . . . Anyone?
I prayed to God last night and said if this was really a part of my purpose he'd find a way to get me there.
I hope he does.
Feel free to (or PLEASE,PLEASE,PLEASE) type in suggestions of what you'd like to see in an electronic healthcare communications system. Hear the sky is the limit and if you don't dream it up now, it may never be.
Want to meet face to face to have a consultation about a patient with a specialist across the nation?
Do you want to be able to view innovative study findings from Stanford at Harvard as the study progresses?
Do you want to have Live Rounds from the comfort of your office with practitioners from across the country present?

It is possible. Today it all sounds like some cyberbot alternate universe I dreamt up while lying in my hospital bed,  but eventually it will be the accept, unquestioned, reality.

What everyone, unanimously, wants first is to be able to access any person's medical record, anywhere, in case of an emergency.
If you are vacationing by yourself in TX and you live in NH there needs to be a system where on arrival at the hospital via ambulance, or even in the ambulance via cell phone application, professionals can search a person's identifying information and receive basic, pertinent, health care information.

Emergency workers need to know: Name, Age, Height, Weight, Sex, Medical History, Surgeries, Previous Acute Conditions, Chronic Conditions, All medications taken, including as needed medications and allergies. We want to know who to contact and a durable power of attorney. Insurance information needs to be there. A complete EMR would be perfect.

The healthcare is all ready an intertwining web of communication, just now there is no formal trail. Since there is no formal process of communication in health care, as there is between departments in manufacturing corporations, important information, or even patient's themselves, get lost in the shuffle.

This would make communication processes more efficient. According to NEHEN, an existing Health Care Exchange Network, it would o reduce the number of customer service representatives answering questions like “Is this patient eligible for care?” or “What is the status of my claim? Is it paid yet?” The shifting of manual processes to electronic processes not only improves customer satisfaction but also allows health plans to reallocate resources from administration to medical care. NEHEN gives health plans real cost savings over paper-based processes and less claims rework.

This would also be used as an on-line program documenting the patient's record. At first we'd start the data entry of patients records, then then they'd be updated with each visit, where ever with who ever.
I'm feeling a little like a commercial. I'll leave now.

No comments: