I don't even know what else to say.
My chemo's giving me a ba-donk-a-donk kicking.
I received my vinblastine Thursday, then slept all Friday, and played most of Saturday except for a decent nap, and yesterday I thought I was in the clear.
No such luck.
I had a little nausea and a little fatigue up until then.
My shortness of breath had increased.
Then yesterday chemo's strong arm gave me a beat down.
I hurt so bad.
My head hurts. My jaw hurts. My neck hurts. It hurts all the way through my parotids.
Then every time I eat, the secretions make it worse.
My mouth burns! It burns like I have strep all over.
And I was worried about losing that steroid weight.
Constant sips of water help.
Lots and lots of morphine help (and by lots I mean the dose could probably control the pain of all you readers).
I called the doctor for a prescription for my mucositis and talked to a wonderful young woman who prescribed me BLM.
That's benadryl, lidocaine, and mylanta.
It helps a little.
It won't get me eating. I'm trying to take bites of bread right now.
I'm going to try ice cream in a second. That worked last night.
I also slept with ice wrapped around my face.
Maybe I should have been less active on Saturday. It was skills and picture day for the soccer team. I could have taken it easier, because now I am MISERABLE.
I am also onmy way to the Dept. of Health's stakeholder meeting.
I knew it was a sign when I had trouble getting a ride.
It's an important one where we actually brainstorm a concept to turn into a reality.
Don't want to miss it, but doubt I'll make it the day before heading to Dartmouth in tears from the pain.
Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."