Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Monday, June 28, 2010

This is Where I hurt.
Any suggestions as how to fix mucositis?


Heather said...

Ugh. I'm sorry. I remember how miserable the mouth sores were, in fact, every part of my mouth was so *burned*.

My doc gave me viscous lidocaine. It was gross, but it helped. He also ordered something called Gel Clair he said that it's not always available in the US but fortunately it was at the time I needed it. Warning- it tastes like black licorice but I think it helped tremendously.

I don't know if they are both miracle treatments or if they were gross enough that I felt "healed" quickly LOL. Neither was pleasant but I remember not having to use them much.

Everything caused my mouth and tongue to burn. Chocolate, too. Even now I can't eat most chocolates-they burn.

I got peppermints that were not exactly a hard candy, more "chalky" and they kind of melted in my mouth. Those were very soothing. My husband got a big bucket of them at Walgreens. I've also seen them in a stick form. They really helped.

I hope something will offer you some relief soon.

linda keenan said...

can you get the gelclair?