Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Wednesday, May 11, 2011
History repeated itself. I tool my 60 percent bendamustine dose on mon. I was at the hospital from 9-2pm. I arrived home at three and fell into a deep sleep. L came to scheck on me, I assume. Bc I was covered in an extra blanket. Maybe he sauw the shakes. At 7 pm I woke up feeling the same way I did for weeks agao, I need to hrow up! I didn't want to bendover to the toilet in fear I'd drop my bp and pass out on thefloor. I grabbed the garbaGe and threw up. I called my mom for help. I was feeling ok.... Then. I took my temp, 101.8. I was not okay. I was going to the hospital. J, dad scrambled to pack me. My mom cared for me. X hid in the lr. This er experience was very different. I presented the same. Fever, sepsis, BP 75/44, hour 140s,I was talking jibberish. I apparently told the doctor after he said, "well, I guess its time for antibiotics. "Good," I said matter of factly, "bc we had this problem a year ago and had to get the prime minister involved.". He scurried out of the room. I didn't have to fight for antibiotics this time. When my mom said I missed my. Evening ms contin dose, it was given to me. There was a question whether I schould go to HSCU (cancer special care unit/icu step down) vs. Icu. I had a nurse from the er, the cancer floor, the hscu, and the icu floowing me around. What ahuge difference from last time when I was stuck on med/surg with the saMe presenting symptoms. I'm in the HSCU room 120. Next chemo time, I think we'll arrange to have it as an in-patient to save me the rushing, packing and trip to the er.