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Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."
Tuesday, December 20, 2011
Hi Too all Merry Christmas to all. Hillary has been going to New York University for her new Drug--SGN35. We have been calling it the miracle of 34th street!! The hospital is on 34th and Lexington not far from the empire state building. I have actually gotten very comfortable in the city. I thought this Farm boy would never like Gotham City or the evil empire! She started the new protocol in August and has been doing Very well with it. She did the same treatment at Dartmouth 2 weeks ago. It was the first time Dartmouth used that drug. Another ground breaking 1st for Hillary. She decided that she will switch back to being a Yankee Fan since the treatment in NY worked and Dana-Farbers in Boston Did not!! Since August she has felt the best she had in Years. Her energy had come back. the Treatment every 3 weeks did not have the sickness that chemo had brought so she was feeling good for about 18 of the 21 days between treatments. She had a PET scan in October. 1 Doctor read it as the cancer being gone but 2 others said it was faint but still near the Kidney. She has been constantly fighting infections and has a weak immune system.Hillary was feeling good enough to take up a job writing articles for a weekly local paper. She writes about 4 articles a week. She is also making jewelry to keep her mind going. She just got notified last week that her Novel was going to be published! I am looking over the contract to see if it is the real deal! (It's not. It's a scam. Boo Tate Publishing!) I have several copies of her first book," z and the cancer Meany". I hope to send a few out if I can find some time. As you could have guessed there is always more to the story. I am always slow to write when things are going well. I guess it is just my nature. I was really starting to believe she had the cure till this week. Hillary is back in the Hospital again. We could not understand much of what she was talking about. She would fall asleep in the middle of a sentence then started sleeping in the middle of a word! They did another pet scan and the cancer has definety returned, It seems to be closer to the liver and the kidney. Her urine " looked like coffee" today. Holy shit here we go again! The doctors have about as many thoughts about what is going on as she has organs. They think the radiation from 5 years ago may have fried the adrenaline something, the thyroid is not working correctly. They are doing a battery of tests tomorrow. They have increased her doses of Steroids already. We are at wits end again. I thought that this Christmas would be nice and smooth this year. .I am doing this update in 2 days because things are moving quickly. Today she had a colonoscopy and a endo--- something. No she was not full of shit!! That stuff they gave her made her dehydrated. They did find an infection in the esophagus. She has been on an antibiotic for a while. We now have an appointment for thursday with the "inventor" of the drug in NY. Dr O has several other treatment ideas that he feels will work. Dartmouth was running out of options. NH just hasn't seen many people like Hillary. Actually I don't think many people have. We are hoping that she will be home for Christmas. That was Xanders Christmas wish 2 years ago!! I think he better wish for it again.I am still confident she will overcome again. She is not invincible but she is darn determined to see Xander grow up. He is playing some mean basketball now. Just the way Hillary used to play. Fast, great Defense and a ball of energy. She has given him a lot of her traits and has taught me a thing or 2 about how tough you can be. I thought I was a tough player in my younger days but I have to say Hillary has me and almost everyone I know beat when it comes to being tough under pressure. She has something to admire.Thanks for all your prayers and thoughts. I was supposed to be getting out Christmas cards but I decided to write a Christmas E mail instead. Here is to all of you for a very Happy Holy and Merry Christmas and a splendid New Year.Vic Nancy, Grace and Patrick, Allen Heather, Pierce and Preston, Jon, Xander and especially Hillary-