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I've tapered myself to 5mg, the lowest dose I've seen in years, and probably, I will ever see. I only tapered to this dose from 7.5 because I kept forgetting my noon dose of 2.5 mg.
I've been napping a lot. Bendamustine really kicks in a couple weeks after taking it, and I've been playing full throttle with X since he's been on vacation. I've worked out a solid half day of good times together, but the other half, I'm exhausted.
Exhausted to the point of non-functioning. If you call, I'll talk, but maybe not make sense. I certainly won't be chipper or even friendly, and that's if I remember talking to you at all. I may not even be awake.
So yesterday I actually wanted to accomplish something, anything, in my half day. I planned out a couple hour nap. At 1:30pm I hopped into bed. I thought about taking my afternoon dose of steroids, but then thought that it would only keep me up, my mind revving with thoughts, and make me cranky later when I wanted to hang out.
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Here you go again, Doc, another patient that didn't take their medications like they were supposed to. |
I bet you all can guess what happened to me.
I went to sleep at 1:30pm and didn't fully wake up again at 5:30. . . am.
And waking up only happened because I forced myself out of bed and headed straight for my prednisone bottle, all 5 mg, and caffeine.
I woke up periodically during my slumber, at 6pm when x and J got home and again at 10pm. I took my evening meds except my herbal tea concoction J made for me. I couldn't stomach it and can't still.
I always need to take my PM meds. If I'm asleep I need waking because you see what happens if I miss one half dose of something.
Waking up was not easy.
My eyes burned, my lungs were stiff and every part of me hurt, but of course, I did it. I'm doing it. Now I'm even dressed and ready to go check out where X will have his morning summer school for reading. I'm even going to pick up some beef bones for the bone marrow soup I plan to cook Sat before I drop X off for an afternoon at meme's while I nap in prep for The Relay for life!
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