Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Monday, January 9, 2012


I did it. The first time ever, really. I fell. I stood up quickly from the couch. I made it to the island. I hollered for help but all I heard was j holler back. I didn't sense help was coming, though obviously it was, so instead of sitting myself safely on the floor and lying down, which would have been an admission of my body being in control, I somehow, don't remember, got my coconut h20 to take my meds before flinging myself into my bedroom where everything is soft and safe. But its not. I passed out. Hit my shin on the bedframe. Now I'm in bed. Maybe I need to be admitted to get over this hurdle. I haven't gotten any supportive care like fluids. I'm taking supplements, but its all pills. I need to get my strength before considering chemo. Tomorrow I'm calling my local doc, maybe dr A about my GVHD. I should have a specialist. That's how I've conquered gvhd so far, mb that needs to happen again.
Sent from my Verizon Wireless BlackBerry

1 comment:

B. said...

Hi Hill,

Looks like things are pretty difficult right now (i'm sure that's an understatement), I'm sending you my love, and all the strength I can muster up North. I wanted to ask though -- are you relaying all of these symptoms to O's team, are you telling them? It sounds like you might need to admit yourself, a few years ago I was so deeply dehydrated (diarrhea all the time, unable to eat, in and out with the horrid fatigue), they admitted me for a almost two weeks to get things under control, as well as at Upenn, we brought me in, they gave me fluids, for days, and then we continued fluids twice a day at home...

Please, please, please, go to Dana Farber, or up down to Columbia, sometimes we're the strongest when we know when and how to ask for help -- I think it's one of those times for you right now.

Sending love and light,
Please get in touch with O and Ellen!