The good news is....

It's past midnight, and I can't sleep. I have insomnia! That's one of the very first signs of prednisone side effects. What else am I doing? I'm eating! I couldn't sleep bc I was thinking about eating! I woke up and cooked myself some adobe chicken on the foreman. I think I can handle protein. I've narrowed down foods I can eat: apples, tangerines, or fruits and veggies, deli turkey slices, and nuts. Still, this is a good sign. I was able to organize my meds today so I can function efficiently. I also called the doc team: Dr. O now at columbia pres. With his nurse Ellen and Dr. Alyea with his NP Melissa at Dana Farber in Boston. Alyea will manage my GVHD, somehow, maybe by finding me a genius specialist. O'Connor is the treatment guy, except the revlomid which is the chemo I may take until feb may make gvhd worse. I can't even take therapy until I heal and gain strength. I think I'm headed straight to trial at columbia in Feb. It's only two weeks away. Its two weeks to stabilize myself. Funny thing is, when I feel the worst, I'm always told I look so great. I get the comment from my specialists, "Wow, you look great for what you've been through, so much different than I pictured you.". I wonder, how did they picture me? Blue in a box seems to be the consensus so I guess somewhere barely above there. Thank you for the comments. Your support is my inspiration. Any questions, ask. I'm here to serve and honestly answer.
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