Getting healthy again after a life threatening illness brings relief, joy and elation like no other event in life brings. Everything is easier and sweeter. Breathing, walking, talking feels airy and freeing. I haven't made it there yet. I'm still tired and having abdominal side effects. I am eating. Good things. I'm thinking. I have energy. I just don't have the extreme prednisone side effects I should have. I'm scared of going on 120 mg of pred. Even though Dr. Alyea (melissa of course) has promised me they're looking into all other possibilities. Dr. A just needs to be updated by Dr. G regarding the last 1.5 years to make his decision more effective. I'm supposed to have an idea of a possible treatment, at least an appointment, by tomorrow. If not, by Friday, I may give up and resort to the prednisone. I'm fortunate a friend of mine has offered quarantine space in her home in E. Hampton. I could be a posh New Yorker while sick.
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Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.
He has since died, and I took on the cause of making cancer care more transparent for everybody.
Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."
I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.
I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."