Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Sunday, January 1, 2012

2012: Kidney Infxs and Extra Mom TLC

Too often my body is taken over by conflicting ailments, one illness that is bad but when put with the other makes life 100x worse. Often it's nausea, vomiting and diarrhea together that leaves me heaving into the garbage while I sit on the toilet praying that it will stop. Well, that hasn't. Instead, It got worse weeks ago with another combo. Now I have a phlegmy cough with spit that needs outing but I can't with my gvhd of the colon. The gvhd has made it impossible for me to eat anything without it passing directly through my body. Now anything like a BM is yellow like my mepron, apparently one of the only things my body is absorbing. How mean is it to make me hack and not allow me to control my bowels? It's like God is playing his own sick joke. Then, For kicks, X has a UTI, his second in a month. UTIs are rare in boys and infx 2 got him scheduled for an ultrasound to look for anatomical issues that would give him kidney infections. I'm wondering why we both have problems with kidney infections. I know mine comes from my lymphoma and the necessarily placed stent, but what's up with X? Sympathy sickness? And that pain is awful. I want him healthy and happy. So today, the first day of 2012, I spent in bed babying my baby. Wrapping him up, stroking his hair, rubbing his belly, catching his vomit and giving him medicine. I call it "extra mom tlc." Sick little ones, or sick anyones, don't heal by medicine alone. They heal and thrive by getting love, hugs, and sincere care that validates getting through the illness to grow healthily. That kind of care, the care that is given lovingly and selflessly, is the best care for all. I wish there were more people available and able to give it. I wish I were one of them.
Sent from my Verizon Wireless BlackBerry

1 comment:

Anonymous said...

you are a great mom