Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Sunday, January 29, 2012

The whole picture

Below the GW Bridge in the am, the bridge that crosses from the Bronx to Manhattan. As long as I remember, I always loved the silhouette of the skyline driving past as the sun rises or falls with it. It always seemed full of new possibilities, a whole new life, like entering a whole new world. Over the years the connotations and dreams have passed, grown, somehow changed, but the feelings have remained the same: the awestruck pattern of possibility ahead. It still exists. But I never thought I'd be a patient. Now, I am. I was admitted via ambulance after having a "near syncopal" episode (almost passing out) at my appt. With Dr. O tues. It was the clinic's first day with seeing patients. I made an impression for sure at the brand new lymphatic center on 60th and 5th. Gorgeous place but in the process of the moving, All records were being moved. It is Chinese New Year today. Canal st is having dragon dancers. I know x would love it. I had only come to nyc for a check up. I packed up three sets of hospital outfits. I had jewelry pieces, my hobbies. I kept obsessing over small hobbies to keep me busy. These are things I never do. Then I slept, a comatose sleep. I barely woke up to call NHPR regarding "obamacare," and what would happen if the ACA was federally overturned during my treatment, taking away the 2 million stipend for me to continue my care? The professional answer: they don't know.


Anonymous said...

Hi Hillary, I hope that despite it being weekend more tests are done resp. first treatment approaches are realized to help you get better as quickly as possible. The morning glow around the Washington bridge on your picture is a nice sight - may it symbolize hope and encouragement for you! All the best for the day to come! Sending love and energy across the ocean, Barbara G

lanabanana said...

I'm wearing the earrings you made for me today, in support of your fight. Keep on, keepin' on!!!!