Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Friday, January 13, 2012

I found the energy for a revival "hillary fit." I'm holding off on Prednisone. I feel ignored by my MD, not receiving his finest. These are bad times happening at Dartmouth. The secretary got sick :( The budget is affecting care but I'm not losing my life over it. I called Boston to Dr. Ted Alyea, who called me back after not seeing me in over a year while in the car on the way home from the airport! He said hold off on the pred. Take immodium around the clock. Try to plug up the one or two emptying stools and he'll try to consult again. At least I have some plan. My electrolytes are stable. I am dehydrated. I am still passing out. I know increasing the dose of prednisone would ultimately lower my quality of life, as well as lessen the length, and that's worth waiting for. I will get the best option.
Sent from my Verizon Wireless BlackBerry

1 comment:

B. said...

Hil, Is there anyway Dr. Aleya or O can prescribe you in-home fluids until you aren't dehydrated anymore? Once you're behind, as you know, you're behind! Maybe it's better to get a head, I had them for about 4 months while I was recovery from a really nasty treatment. I just had my port accessed at all times, and my mom and I actually infused me twice a day for four months until I was on top of things...

In-home fluid care, Dana Farber can DEFinitely prescribe it as they offered it to me when I was in Boston, floundering...

Hope dress shopping goes well,
thinking of you!