Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Thursday, April 2, 2009

I'm Smiling

I'm smiling as I write this. Everything is good. Life is good. It's all going to be okay.

Most important good news, first things first. Please read the email below:

Today an editorial appears in the Union Leader that slams the idea of raising tobacco taxes. Please click here for the article and post a comment on the bottom of the webpage.

With just a few sentences, tell why you think raising tobacco taxes is a good idea!

Remember that every time a state has significantly increased a tax on tobacco products, the rates of smoking - especially among youth - drop. That means more lives saved, and lower healthcare costs for the rest of us. I have great news that shows how efforts like this are paying off!

Today, the House Finance Committee voted to restore $1.2 million in funding to the Catastrophic Illness Program for two years (14 yes'es, 7 no's)! The Finance Committee also voted to give the Cancer Plan $2 million for two years (14 yes'es, 11 no's)! These are big wins that YOU helped achieve, so congratulations! Your advocacy has tentatively raised $3.2 million for the fight against cancer!

But this funding can be snatched away by other lawmakers as the budget moves through the legislative process. So we've got to keep fighting! Our next step is to get these two measures passed when the whole House votes on the budget, likely on April 8.

Thank you for all you've done and will do.

Katherine Klem

CoordinatorAmerican Cancer Society

2 Commerce Drive, Suite 110Bedford, NH 03110

katherine.klem@cancer.orgphone: 603-471-4112 fax: 603-472-7093

Yes, you have to read all this information before you get any personal information about me.

Look to the right and see about the town hall style meeting on health care reform the EVENING BEFORE THE HOUSE BUDGET VOTE.

Exercise your vote. The representatives represent you.

Now to me, My eyes are not as bad as I thought. My corneas are intact. The rehydrating of my eyes is slow. There is something wrong with the lacrimal glands.

I think. I don't quite get this whole eye thing. It's not my area at all, but I do know I'm in pain and having trouble looking at the computerscrean.

I need to readjust how I post and write.

This can be fixed.

I'm stopping the benadryl I was taking to prevent the migraines and I changed my brand of flaxseeed, a homeopathic medication that is exactly like a food additive and really only alters in the refinement process minimally from brand to brand.

Flax seed should help with lubrication.

I started magnesium glyoxolate for my migraines instead. We'll see what happens.

I'm still seeing the eye guy, Dr. Dana, at Mass Eye & Ear on Tuesday.

I can't make the townhall on Tuesday. I need to go to the doctors on Tuesday. Come home to spend time with X and then go back to Boston on Weds.

I have an appointment with, hopefully, cross your fingers, my psychiatrist.

I did find the perfect one. I'm really excited. She's been publishing since before I was born on really cool topcs that I like.

I think she'll understand me and not feel really bad for me, which is an important boundary.

So I'll go down again on Weds. see her and spend the evening with my sister. Then I'll have my PET scan on Thursday.

This is my end all, be all diagnostic scan.

It feels like the chopping block or the guilliatine. It decides my fate, whether I'll be able to ease back into life or continue to fight.

It's obviously an anxiety producing day.

But it was all good, all day all today.

My liver is looking better, and I am never, ever to do anything that may possibly hurt it again. No, no, no. I got scolded.

I really like my liver and don't want to do anything to offend it. My nodes are inflamed but don't feel pathological (That's bad).

I keep referring to my Spontaneous Healing book. It's by Andrew Weil. When I was in the sixth grade I contracted mono. I think it what CMV (cytomegalo virus).

I don't really know, maybe it was EPV (epstein barr virus).

These both cause mononeuclosis.

I was laid out in bed for half the year, all through spring.

In the summer when I recovered I became obsessed with healing, specifically curing bone marrow disorders I thought were caused by viruses.

I read Spontaneous Healing.

I'm described in there perfectly, scattered among several different case studies.

I think what I'm experienced is caused by a virus, maybe in combination with air pollution. I think it's specifically benzene levels with a small genetic susceptibilty.

That's all for now. I'm tired.


Anonymous said...

I think dropping the benadryl is a good idea...that stuff dries out everything.
Glad to see that you are feeling better...and more upbeat.
Stay optimistic, Hillary.

Anonymous said...

Thinking of you Hill ... & like the optimistic note re: the eyes. You are in my thoughts & know that if there is anything I can do, I'm just a quick call away.


PS: still chuckling over the April Fool's suggestions.

brynn said...

I am happy for two reasons! For the progress made on saving the programs for health care. I am also happy that you are feeling better! :) You are in my thoughts always! I have been battling a cold too...hopefully it is gone so I can come hang out again! :) I miss you! Talk to you soon! Stay strong!