Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Tuesday, April 28, 2009

It's On!

It’s morning and the race is on!
I’m coming out of the gate and I’m on the move
I don’t know what I’m racing against or why I need to do is so quickly, but I just know I do.
I’m sure it is the steroids.
To explain steroids simply, they are an adrenaline rush in a pill.
You know the feeling that comes from the drop in a roller coaster or base jumping? Well, that’s available in pill form.
I don’t suggest thrill seekers everywhere start doing prednisone as an alternative to sklpunking, but it gives the same feeling.
The problem is, it gives the same feeling and gives and gives and gives with no end or resolution in site.
I have the constant need to accomplish or to finish something.
I assume this is a conditioned response, when adrenaline is usually sent into the system it’s for fight or flight. It is useful to survive, to finish that last twenty minutes of the soccer game to attain superhuman strength to lift a lawn mower off a person, it’s not meant to be left idle with no outlet.
But it is within me.
I’m on big ball of adrenaline with no real outlet.
When this is combined with the clear Post Traumatic Stress Disorder I have from years of wondering if I’m going to live or die day to day and my constant anxiety that I just can’t seem to get a handle on I suggest you all just move out of my way.
I’m one big human bulldozer.
However, You know me, I’ve found things to do. I’ve found plenty to accomplish.
I have been given the ability to think more clearly with my newfound energy.
I’ve made my decision regarding my treatment and Plan Y.
I Will be following through with the T Lymphocyte infusion at Dana Farber to complete all the potential that can be received from my allogenic stem cell transplant if the cancerous nodes still exist in June.
I haven’t decided if I will undertake this procedure in June or wait until the end of the summer.
I need more information regarding the treatment, side effects, etc.
I have no idea what a T Lymphocyte infusion entails. I just know it should boost the anti-cancer properties of Simone (my immune system).
I will continue with Dr. Klema, my chiropractor and accupressurist.
I will continue to take a combination of supplementations. I will keep two that I found to be effective within the German regimen I was trying: Berberis Hommaccord (an anti-inflammatory) and X-Ray 30C (to facilitate detoxification of radiation).
I will take the “Standard Process Protocol for Hodgkin’s Lymphoma.” These are whole food supplements. It will be like adding to my diet. These bills include thymex, hepatrope, & spleen PMG.
I’ll add these in addition to the strict diet I acclimated myself to finally: 75% fruits and vegetables with very little red meat. I eat lots of fish.
I also add tons of herbs. Herbs have amazing properties that function in similar manners to chemotherapy agents that use antiogenesis factors, anti-inflammatory powers, and healthy immune system boosting abilities.
A favorite is turmeric.
Cancer patients, go buy this now. If you can only have one herb, turmeric is it. It is used in mustards.
I’m also sticking with the necessary baseline medications from my transplant: acyclovir, bactrim, folic acid, restasis, corticosteroid lotions, oxycontin and oxycodone.
The rest of my medications are for symptomatic management.
I have a lot of those.
I will remain incontact with Dr. Jacob of Wesserberg Germany. Her reputation procedes her.
I may consult a Dr. Ralph Moss online to confirm the self health actions I am taking are correct in his opinion. The barrier that has stopped me from seeking his advice is the high price of $300 that needs to be paid without ever actually speaking to him.
Eitherway, I would like to try him to see if he is a valid practitioner of alternatives. He is well known in Manhattan. You can goggle Ralph Moss online. He publishes a weekly “Moss Report” I have signed on to receive that sends recent findings in cancer research.
He has also published “Where to Go” series, which oulines alternative treatment centers in areas surrounding major treatment centers such as Boston (I have it, comment if you want it), New York, Houston, and GERMANY!
Jon, Xander and I have gotten all the paperwork together for our passports if this option has to be excercised.
If it doesn’t, great, but if it does, we want to be as prepared as possible.
If it’s meant to be, everything will work itself out. We’ve now become accostumed enough to be semi-comfortable with relocating for care.
But just like the Boy Scouts say, “Be prepared.”
I am.


Anonymous said...

Hope you know that there are a lot of us who are quietly behind you ... sending you good thoughts, hopes & prayers. I personally remain optimistic that you are going to beat this dreaded disease ... so stay strong ... & don't hesitate do reach out if there is anything we can do to help.


Cancer Becomes Me said...

Rock on sister. Those steroids are a blessing and a curse. So curse the blessing. You have my support.