Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Saturday, April 25, 2009

Steroid Induced Accomplishments

I slept like a rock last night.
I probably slept like a rock because I ran around like a maniac all day yesterday.
I’ve been running around like a maniac all week.
It is vacation week.
All you parents out there know what I’m talking about.
You’re child wants to be amused, they want to be engaged, every single second, of every single day.
I’ve found that having Alexis during these weeks actually makes it EASIER.
Two kids, above the age of six, can amuse each other and be left alone to play for a significant amount of time without killing each other.
This resolves the only child problem I have with Xander where he follows me around everywhere asking to do projects, asking to have friends over, wanting to do a hundred different things at once all with me.
I’m getting tired just writing about those days.
You don’t have to have cancer to know how exhausting the constant demands for attention from children can be, no matter how much you love them.
Thanks to the script of ‘roids on Sunday, I was at least able to function.
Oh, Jessie, you were so right, I slept well last night with ambien.
When there is that much chemically induced excitement going on in your body, you need something to stop it in its tracks or it could go on forever.
Yesterday, X and I went grocery shopping in the early AM.
We ran into a friend from his kindergarten class and invited him to play since Dani and the kids were coming to play too.
Now that the weather is nice and we can be outside, my restrictions are less strict. I’m free to see people in the open air as long as they don’t get to close, cough or sneeze on me.
I still have a strict look don’t touch policy.
I no longer have a hide in my house and play hermit policy.
Then, after grocery shopping, (with my mask and gloves on of course) we played outside, then we went in for snack, then Dani and the kids came over.
Then came the good stuff, I decided I wanted a fire place for the summer. I want to do some marshmallow roasting and some s’more making in the back yard.
My budget for this project: $0.
No problem, I’m a scrounger. I love repurposing. I always have. I like to see what I can make out of other people’s waste.
Thanks mom and dad for not needing to use those cinderblocks that used to hold the cover on the pool.
I knew exactly where I could scrounge up some serious cinderblocks to build a fire pit.
What I didn’t account for was just how heavy blocks of concrete are.
I weighed in at 108lbs on Thursday. The blocks must have been 50lbs.
But I was not swayed, oh no, not me. I wanted that damn fireplace for those damn marshmallows.
I was able to move ten and form a nice semi circle that will work until I get the energy to finish it.
Then, Dani and the kids showed up and I recruited them to stack the wood.
Eli and Luke weren’t as excited about this stacking wood project as I thought they would be.
In fact, I was surprised that when I tried to stick them in the back of the truck to go four wheeling around our property and they had no idea what I was talking about.
I thought every country child had at some point but stuck in the back of a truck and driven around the woods for fun?
Maybe, this is not as normal as I thought it was.
I guess that’s just my family.
Since the kids weren’t so keen on my supermomma projects, Dani helped throw some compost into buckets for the garden while we were getting wood.
That woman can really run a shovel.
I know. Take it from a woman with a lot of experience from “St.Pierre University,” this is the family business where I had to work in high school to drive home exactly WHY I would be going to college.
If I didn’t go to college, I would be condemned to run a shovel in the family excavating business for the rest of my life!
If this had happened, I would definitely hire Dani.
Just for fun to make life more difficult in our backyard party project, Dani and I began throwing the wood out of the car while the boys ran to play.
What we didn’t account for was the two dogs, Nika, our german shepard, and Lily, my parent’s golden retriever who we’re house sitting, thinking we were throwing wood for them.
Boy, were they excited to fetch those logs and try to run away with them.
Needless to say, our wood is not stacked. We saved that for another day.
By this time it was 1:30 and officially my nap time.
My mother in-law has been taking Xander in the afternoons so I can honor this three year old ritual of napping around 1:30.
Even with steroids, I still honor this. I don’t think there is anything worse than a tired, steroid strung, cranky cancer patient.
I think I may turn into one of those semi-humans from “I am Legend.”
If you were to combine steroids, hunger, and fatigue, I may well be pimped out as a weapon of mass destruction.
This was my day yesterday. All this was accomplished, and it was only one day of the vacation.
I’ve gotten more accomplished in the last week than in the past year. I’m excited I get to keep taking the prednisone at least for another couple of weeks.
We’ll see what other projects I can do and how many nights of sleeping like a rock I can get.

1 comment:

DebA said...

Reading your words is like being there...I am always impressed and amazed. I feel it all and I wish for more for you and the ones you love. There are no words I can offer. Thank You for sharing and know you are making an impact on many of us who read and follow your brave, honest and fun life.