Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

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Tuesday, October 12, 2010

Chemo Day 1

And I am doing okay. I can't sleep like I want to. I'm trying to force myself since I'm picking up X at school. Luckily, at 7, if I'm having trouble functioning we're only alone for 45 minutes and he can care for himself.

We've altered our home so he can be completely independent in getting his own snacks, accessing his games or sports equipment, but I do know he has plans for this afternoon.

He thinks his momma is doing GOOOOOD. He went to school with no prob. HE wants to come home and do chores to make cash.
HE wants to fold clothes.
HE wants to clean my car.
This I think I can deal with. I may need a small nap later and then up again for homework/dinner/bedtime.

Even better, I'm motivated. I'm curious. I feel like I'm completing some projects with my best efforts, and now I'm moving on.

I KNOW there is a woman living in the United States who has had Hodgkin's Disease for Nineteen Years.

I read about her in a magazine on a day I was feeling self righteous, and did not steal the magazine.

I am a hopeless magazine lifter. I feel like it's my right in exchange for the wait, and I sometimes bring them back with my own collection.

But on that day I was going for Sainthood, and didn't.

I must find her. I'm also interested in another young woman who recently passed that survived nine years with Hogkin's.

I am fairly confident her parents would be willing to share her information for the long term betterment of treatment. It's a way their child can continue to give and that her death way not in vain.

3 comments:

Bekah said...

Hillary, if you're referring to the child who survived with Hodgkin's for 9 years? And thinking of Adrienne... most of her fight is on her blog.

http://adrienne95070.blogspot.com/

That her mother, Alison writes.
I had the pleasure to have some meals with Adrienne, and still am close with Alison. Both are wonderful souls. Before Adrienne passed away, I was able to talk with her at length about her experiences, and Alison ALWAYS offers advice and help on this board:

http://forums.lymphoma.com/index.php

and through email...her email is:
alison95070@yahoo.com

Both women directed me to Dr. O'conner who I've been telling you about for the last two years. Adrienne went on several clinical trials, and some of which were in NY -- she adored Dr. O and his team, so do I and Alison.

I still strongly believe that you should make an appointment there... the reason that most Hodgers survive so long (the ones your speaking of) are because we go on clinical trials, and sometimes put a little bit of real chemo (the chemo your on now) in the mix. But it's all about balance...

Anyway, I hope you're doing well. Alison is a great Hodgkin's advocate to speak with, and there is lots and lots of information on the hodgkin's board about Refractory Disease people like us.

Hope this helps,
Email me if you need anything okay?

(RebekahFurey@mac.com)

xoxo
Bekah

Colette Salazar said...

its Colette. sending love your way!!! I had to laugh about the magazine stealing, your right it is fair for the wait. But thats really interesting about those other people you mentioned, where were they from? TTYL

Colette Salazar said...

its Colette. sending love your way!!! I had to laugh about the magazine stealing, your right it is fair for the wait. But thats really interesting about those other people you mentioned, where were they from? TTYL