Baldies' Blog began originally in the UK by a 26 year old journalist with a blood cancer on a mission to inform the world about bone marrow donation.

He has since died, and I took on the cause of making cancer care more transparent for everybody.

Cancer is a disease that will touch everybody through diagnosis or affiliation: 1 in 2 men will be diagnosed and 1 in 3 woman will hear those words, "You Have Cancer."

I invite you to read how I feel along my journey and
how I am continuing to live a full life alongside my Hodgkin's lymphoma, with me controlling my cancer, not my cancer controlling me.

I hope that "Baldies' Blog" will prepare you to handle whatever life sends you, but especially if it's the message, "You Have Cancer."

Get a playlist! Standalone player Get Ringtones

Wednesday, October 13, 2010

Thank you Luvlies

Thank you for the responses.

I'm well aware of both Bekah's and Colette's opinions of where I should be treated.
Bekah says I should meet with Dr. O'Connor, a research and trial drug guru of Columbia, I think.
Colette Votes for Dr. Ursula Jacob of The Klinik Im Alpenpak in Germany, but does come to NYC time to time. Since she's gotten so frustrated with me for not taking this route either, she's recommended Dr. Ralph Moss and Dr. Rodriguez, both of NYC, of course
I would be interested, possibly, at some point, in meeting these people.
I'm closest to getting a consult with Dr. Ralph Moss for the discount price of $800-1200.
But silly, silly me. I'm happy with my team. I think between Gautier, Alyea, Weinhouse, and I, with consultation when needed, can be just as successful as the vogue Doctor's of NYC.
In fact, I say its on that we can keep me alive just as long as anybody else.
I'm feeling relatively confident.

But if my PET scan Friday comes back with more active growth, I will finally make that appointment with Moss.

But believe it or not, the woman I am seeking is not Adrienne. I did get ahold of her family. Ironically, I thought of her on Oct. 11th, exactly a year after her death. No coincidence there.

The woman I am looking for is older, possibly young 40s. I don't think we'll find her on the blogosphere. She was diagnosed 19 years ago when she was a young mother. She's lived to see both her children graduate from high school and move on to college. She has long brown hair and is still able to stand straight and smile genuinely for a photo shoot.

She does not look like a woman who has been through the ringer, and I must find her, not only to review her records, but to understand her mindset and personality.

1 comment:

Jeannie said...

Not sure if this is who you are talking about or not:

Her name is Helene Neville